Needs and concerns of transgender individuals regarding interdisciplinary transgender healthcare: A non-clinical online survey

被引:79
作者
Eyssel, Jana [1 ]
Koehler, Andreas [1 ]
Dekker, Arne [1 ]
Sehner, Susanne [2 ]
Nieder, Timo O. [1 ]
机构
[1] Univ Med Ctr Hamburg Eppendorf, Interdisciplinary Transgender Healthcare Ctr Hamb, Dept Sex Res & Forens Psychiat, Hamburg, Germany
[2] Univ Med Ctr Hamburg Eppendorf, Ctr Expt Med, Hamburg, Germany
来源
PLOS ONE | 2017年 / 12卷 / 08期
关键词
PATIENT SATISFACTION; GENDER IDENTITY; CONSUMER INVOLVEMENT; PREVALENCE; DYSPHORIA; SEX; TRANSSEXUALISM; DIVERSITY; COMMUNITY; ONTARIO;
D O I
10.1371/journal.pone.0183014
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
This study investigates the needs and concerns transgender (short: trans) individuals have concerning trans healthcare (THC) in interdisciplinary THC centres. Trans individuals' gender does not (fully/constantly) match their sex assigned at birth. To be able to live in their gender role and to prevent or minimise gender dysphoria, they might require a multidisciplinary set of transition related healthcare services. The current shift from the traditionally highly regulated, hierarchical and pathologising approach to THC towards a more patient-centred approach has highlighted the importance of trans patients' satisfaction with treatment processes and results. As the still influential regulations have a negative effect on patient satisfaction, and might also keep trans individuals from seeking transition related treatment, it is crucial to investigate what trans individuals, whether patients or not, need and fear regarding transition related healthcare. Against the backdrop of mixed reactions received from the local trans community regarding the foundation of the Interdisciplinary Transgender Health-care Centre Hamburg (ITHCCH), Germany, this study seeks to determine what trans individuals need with respect to THC in order to guarantee for high quality service provision at the ITHCCH. To this end, an online questionnaire was developed. The researchers employed a participatory approach to questionnaire development by involving a working group consisting of local trans support group representatives and (THC) specialists (N = 4). The sample consisted of N = 415 trans-identified individuals aged between 16 and 76. Most of them were based in Germany. 85.2% (n = 382) reported experience with transition related healthcare and 72.5% (n = 301) had (additional) treatments planned. Analysis revealed a need for communication and feedback opportunities. Furthermore, during the treatment process, addressing individual needs was considered crucial by participants. They agreed moderately with concerns towards THC centres. 96.5% of participants would like high decision-making power concerning treatment-associated decisions. The results demonstrate the importance of patient-centred THC that takes patients' individual needs and realities into consideration and involves patients in decision-making processes.
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页数:26
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共 83 条
  • [1] What patients want - Consumer involvement in the design of a randomized controlled trial of routine oxygen supplementation after acute stroke
    Ali, K
    Roffe, C
    Crome, P
    [J]. STROKE, 2006, 37 (03) : 865 - 871
  • [2] American Psychiatric Association, 2013, SEX CHANG HIST TRANS
  • [3] [Anonymous], 2012, IBM SPSS STAT WIND V
  • [4] [Anonymous], 2020, EUR UN LESB GAY BIS
  • [5] [Anonymous], INT CLASS DIS 10 ICD
  • [6] [Anonymous], 2009, PATIENTS EXPERIENCE
  • [7] [Anonymous], 2015, STAT STAT SOFTW REL
  • [8] [Anonymous], 2010, BEING TRANSGENDER BE
  • [9] [Anonymous], 1999, EVALUATION SOCIAL WO
  • [10] Systematic review and meta-analysis of prevalence studies in transsexualism
    Arcelus, J.
    Bouman, W. P.
    Van Den Noortgate, W.
    Claes, L.
    Witcomb, G.
    Fernandez-Aranda, F.
    [J]. EUROPEAN PSYCHIATRY, 2015, 30 (06) : 807 - 815