When a Child Dies: Parents' Experiences of Palliative Care-An Integrative Literature Review

被引：34

作者：

Melin-Johansson, Christina ^{[1
]}

Axelsson, Inge ^{[1
,2
]}

Grundberg, Marie Jonsson ^{[2
]}

Hallqvist, Frida ^{[2
]}

机构：

[1] Mid Sweden Univ, Dept Nursing Sci, Ostersund, Sweden

[2] Ostersund Hosp, Ostersund, Sweden

来源：

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES | 2014年 / 29卷 / 06期

关键词：

Communication; Family; Literature review; Palliative care; Pediatrics; Support; OF-LIFE CARE; FAMILY PERSPECTIVES; HOSPITAL STAFF; END; QUALITY; CANCER; DEATH; NEEDS;

D O I：

10.1016/j.pedn.2014.06.009

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

The aim of this integrative review was to increase knowledge about parents' experiences of palliative care when their child is dying or has died due to illness using Whittemore and Knafl (2005) analysis process. Computerized databases were used to search the literature. Nine papers met the inclusion criteria. The analysis resulted in five categories: genuine communication, sincere relationships, respect as an expert, and alleviation of suffering and need of support, including 15 subcategories. Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further studies need to be performed. (C) 2014 Elsevier Inc. All rights reserved.

引用

页码：660 / 669

页数：10

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