Developing a national registry of veterans with spinal cord dysfunction: experiences and implications

被引:14
作者
Samsa, G [1 ]
Hoenig, H
Carswell, J
Sloane, R
Bovender, CR
Lukas, CV
Horner, RD
机构
[1] Duke Univ, Ctr Hlth Policy Res & Educ, Durham, NC 27706 USA
[2] Duke Univ, Dept Med, Durham, NC USA
[3] Duke Univ, Med Ctr, Dept Community & Family Med, Durham, NC 27710 USA
[4] Duke Univ, Ctr Aging, Durham, NC USA
[5] Dept Vet Affairs Med Ctr, Phys Med & Rehabil Serv, Durham, NC USA
[6] Dept Vet Affairs Med Ctr, Ctr Hlth Serv Res Primary Care, Durham, NC USA
[7] Dept Vet Affairs, Management Decis Res Ctr, Boston, MA USA
[8] Boston Univ, Sch Publ Hlth, Dept Hlth Serv, Boston, MA USA
[9] Paralyzed Vet Amer, Washington, DC USA
关键词
spinal cord injury; spinal cord dysfunction; registry; data base;
D O I
10.1038/sj.sc.3100527
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
We describe the development of a registry of veterans with spinal cord dysfunction who have been treated within the Department of Veterans Affairs health care facilities. The registry departs from the function and structure of traditional registries by a more extensive utilization of advances in computer technology; in particular, by its reliance upon computerized record linkage and by its association with a set of computer-based clinical management and reporting tools. We discuss some of the applications of the registry to research for persons with spinal cord dysfunction as well as implications that our experiences provide for developing other registries of persons with disabilities.
引用
收藏
页码:57 / 62
页数:6
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