Supporting self-management in palliative care throughout the cancer care trajectory

被引:13
作者
Schulman-Green, Dena [1 ]
Brody, Abraham [2 ]
Gilbertson-White, Stephanie [3 ]
Whittemore, Robin [1 ]
McCorkle, Ruth [1 ]
机构
[1] Yale Sch Nursing, POB 27399, West Haven, CT 06516 USA
[2] NYU, Rory Meyers Coll Nursing, Hartford Inst Geriatr Nursing, New York, NY USA
[3] Univ Iowa, Coll Nursing, Iowa City, IA 52242 USA
关键词
cancer; chronic illness; framework; palliative; self-management; QUALITY-OF-LIFE; FAMILY-MANAGEMENT; ONCOLOGY CARE; SURVIVORS; SYMPTOMS; PEOPLE; INTERVENTIONS; PERSPECTIVES; EXPERIENCES; OUTCOMES;
D O I
10.1097/SPC.0000000000000373
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose of review Despite increased survivorship and the subsequent need for chronic management of cancer, the association of self-management and palliative care is still emerging within cancer care. Routine and timely use of self-management strategies in the palliative setting can help reduce self-management burden and maximize quality of life. In this review, we consider the complementary relationship of self-management and palliative care and how they support living with cancer as a chronic illness. Recent findings Recent studies provide evidence of support among patients, family caregivers and healthcare professionals for integration of self-management interventions into palliative cancer care. As a guiding framework, components of the revised Self and Family Management Framework correspond to the provision of palliative care across the care trajectory, including the phases of curative care, palliative care, end-of-life care and bereavement. Additional work among self-management partners facing cancer and other life-limiting illnesses, that is patients, family caregivers and healthcare professionals, would be useful in developing interventions that incorporate self-management and palliative care to improve health outcomes. Summary There is an increasing acceptance of the complementarity of self-management and palliative care in cancer care. Their integration can support patients with cancer and their family caregivers across the care trajectory.
引用
收藏
页码:299 / 307
页数:9
相关论文
共 50 条
[1]  
[Anonymous], CANC NURS
[2]  
[Anonymous], WHO Definition of Palliative Care
[3]  
[Anonymous], 1990, WHO TECH REP SER, V804, P1
[4]   Integrative medicine and the oncology patient: options and benefits [J].
Armstrong, Karen ;
Lanni, Thomas, Jr. ;
Anderson, Maureen M. ;
Patricolo, Gail Elliott .
SUPPORTIVE CARE IN CANCER, 2018, 26 (07) :2267-2273
[5]   Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment [J].
Basch, Ethan ;
Deal, Allison M. ;
Dueck, Amylou C. ;
Scher, Howard I. ;
Kris, Mark G. ;
Hudis, Clifford ;
Schrag, Deborah .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2017, 318 (02) :197-198
[6]   Self-management toolkit and delivery strategy for end-of-life pain: the mixed-methods feasibility study [J].
Bennett, Michael I. ;
Mulvey, Matthew R. ;
Campling, Natasha ;
Latter, Sue ;
Richardson, Alison ;
Bekker, Hilary ;
Blenkinsopp, Alison ;
Carder, Paul ;
Closs, Jose ;
Farrin, Amanda ;
Flemming, Kate ;
Gallagher, Jean ;
Meads, David ;
Morley, Stephen ;
O'Dwyer, John ;
Wright-Hughes, Alexandra ;
Hartley, Suzanne .
HEALTH TECHNOLOGY ASSESSMENT, 2017, 21 (76) :1-+
[7]   Self-management interventions for cancer survivors: a systematic review [J].
Boland, Lauren ;
Bennett, Kathleen ;
Connolly, Deirdre .
SUPPORTIVE CARE IN CANCER, 2018, 26 (05) :1585-1595
[8]   The Effects of an Inpatient Palliative Care Team on Discharge Disposition [J].
Brody, Abraham Aizer ;
Ciemins, Elizabeth ;
Newman, Jeffrey ;
Harrington, Charlene .
JOURNAL OF PALLIATIVE MEDICINE, 2010, 13 (05) :541-548
[9]   Patient and caregiver perspectives on decision support for symptom and quality of life management during cancer treatment: Implications for eHealth [J].
Cooley, Mary E. ;
Nayak, Manan M. ;
Abrahm, Janet L. ;
Braun, Ilana M. ;
Rabin, Michael S. ;
Brzozowski, Jane ;
Lathan, Christopher ;
Berry, Donna L. .
PSYCHO-ONCOLOGY, 2017, 26 (08) :1105-1112
[10]   Patients' experiences and perspectives of multiple concurrent symptoms in advanced cancer: a semi-structured interview study [J].
Dong, Skye T. ;
Butow, Phyllis N. ;
Tong, Allison ;
Agar, Meera ;
Boyle, Frances ;
Forster, Benjamin C. ;
Stockler, Martin ;
Lovell, Melanie R. .
SUPPORTIVE CARE IN CANCER, 2016, 24 (03) :1373-1386