Natural Language Processing-Based Virtual Cofacilitator for Online Cancer Support Groups: Protocol for an Algorithm Development and Validation Study

被引:10
作者
Leung, Yvonne W. [1 ,2 ,3 ]
Wouterloot, Elise [1 ]
Adikari, Achini [4 ]
Hirst, Graeme [5 ]
de Silva, Daswin [4 ]
Wong, Jiahui [1 ,2 ]
Bender, Jacqueline L. [3 ,6 ]
Gancarz, Mathew [1 ]
Gratzer, David [2 ,7 ]
Alahakoon, Damminda [4 ]
Esplen, Mary Jane [2 ]
机构
[1] Univ Hlth Network, de Souza Inst, 222 St Patrick St Rm 503, Toronto, ON M5T 1V4, Canada
[2] Univ Toronto, Fac Med, Dept Psychiat, Toronto, ON, Canada
[3] Univ Hlth Network, Princess Margaret Canc Ctr, Toronto, ON, Canada
[4] La Trobe Univ, Ctr Data Analyt & Cognit, Melbourne, Vic, Australia
[5] Univ Toronto, Dept Comp Sci, Toronto, ON, Canada
[6] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada
[7] Ctr Addict & Mental Hlth, Toronto, ON, Canada
来源
JMIR RESEARCH PROTOCOLS | 2021年 / 10卷 / 01期
关键词
artificial intelligence; cancer; online support groups; emotional distress; natural language processing; participant engagement; BREAST-CANCER; DEPRESSION; DISTRESS; WOMEN; FRAMEWORK; VALIDITY; EMOTION; ANXIETY;
D O I
10.2196/21453
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Cancer and its treatment can significantly impact the short-and long-term psychological well-being of patients and families. Emotional distress and depressive symptomatology are often associated with poor treatment adherence, reduced quality of life, and higher mortality. Cancer support groups, especially those led by health care professionals, provide a safe place for participants to discuss fear, normalize stress reactions, share solidarity, and learn about effective strategies to build resilience and enhance coping. However, in-person support groups may not always be accessible to individuals; geographic distance is one of the barriers for access, and compromised physical condition (eg, fatigue, pain) is another. Emerging evidence supports the effectiveness of online support groups in reducing access barriers. Text-based and professional-led online support groups have been offered by Cancer Chat Canada. Participants join the group discussion using text in real time. However, therapist leaders report some challenges leading text-based online support groups in the absence of visual cues, particularly in tracking participant distress. With multiple participants typing at the same time, the nuances of the text messages or red flags for distress can sometimes be missed. Recent advances in artificial intelligence such as deep learning-based natural language processing offer potential solutions. This technology can be used to analyze online support group text data to track participants' expressed emotional distress, including fear, sadness, and hopelessness. Artificial intelligence allows session activities to be monitored in real time and alerts the therapist to participant disengagement. Objective: We aim to develop and evaluate an artificial intelligence-based cofacilitator prototype to track and monitor online support group participants' distress through real-time analysis of text-based messages posted during synchronous sessions. Methods: An artificial intelligence-based cofacilitator will be developed to identify participants who are at-risk for increased emotional distress and track participant engagement and in-session group cohesion levels, providing real-time alerts for therapist to follow-up; generate postsession participant profiles that contain discussion content keywords and emotion profiles for each session; and automatically suggest tailored resources to participants according to their needs. The study is designed to be conducted in 4 phases consisting of (1) development based on a subset of data and an existing natural language processing framework, (2) performance evaluation using human scoring, (3) beta testing, and (4) user experience evaluation. Results: This study received ethics approval in August 2019. Phase 1, development of an artificial intelligence-based cofacilitator, was completed in January 2020. As of December 2020, phase 2 is underway. The study is expected to be completed by September 2021. Conclusions: An artificial intelligence-based cofacilitator offers a promising new mode of delivery of person-centered online support groups tailored to individual needs.
引用
收藏
页数:14
相关论文
共 50 条
  • [11] Insights on the Side Effects of Female Contraceptive Products From Online Drug Reviews: Natural Language Processing-Based Content Analysis
    Groene, Nicole
    Nickel, Audrey
    Rohn, Amanda E.
    JMIR AI, 2025, 4
  • [12] Natural Language Processing Versus Diagnosis Code-Based Methods for Postherpetic Neuralgia Identification: Algorithm Development and Validation
    Zheng, Chengyi
    Ackerson, Bradley
    Qiu, Sijia
    Sy, Lina S.
    Daily, Leticia I. Vega
    Song, Jeannie
    Qian, Lei
    Luo, Yi
    Ku, Jennifer H.
    Cheng, Yanjun
    Wu, Jun
    Tseng, Hung Fu
    JMIR MEDICAL INFORMATICS, 2024, 12
  • [13] Development and Validation of a Natural Language Processing Algorithm to Pseudonymize Documents in the Context of a Clinical Data Warehouse
    Tannier, Xavier
    Wajsburt, Perceval
    Calliger, Alice
    Dura, Basile
    Mouchet, Alexandre
    Hilka, Martin
    Bey, Romain
    METHODS OF INFORMATION IN MEDICINE, 2024, 63 (01/02) : 21 - 34
  • [14] Medical Needs Extraction for Breast Cancer Patients from Question and Answer Services: Natural Language Processing-Based Approach
    Kamba, Masaru
    Manabe, Masae
    Wakamiya, Shoko
    Yada, Shuntaro
    Aramaki, Eiji
    Odani, Satomi
    Miyashiro, Isao
    JMIR CANCER, 2021, 7 (04):
  • [15] An Empirical Evaluation of Prompting Strategies for Large Language Models in Zero-Shot Clinical Natural Language Processing: Algorithm Development and Validation Study
    Sivarajkumar, Sonish
    Kelley, Mark
    Samolyk-Mazzanti, Alyssa
    Visweswaran, Shyam
    Wang, Yanshan
    JMIR MEDICAL INFORMATICS, 2024, 12
  • [16] Determining EGFR and ALK Status in a Population-Based Cancer Registry: A Natural Language Processing Validation Study
    Goulart, Bernardo
    Silgard, Emily
    Baik, Christina
    Bansal, Aasthaa
    Greenwood-Hickman, Mikael
    Hanson, Annika
    Ramsey, Scott
    Schwartz, Stephen
    JOURNAL OF THORACIC ONCOLOGY, 2017, 12 (01) : S1438 - S1438
  • [17] Classification of Patients'Judgments of Their Physicians inWeb-Based Written Reviews Using Natural Language Processing:Algorithm Development and Validation
    Madanay, Farrah
    Tu, Karissa
    Campagna, Ada
    Davis, J. Kelly
    Doerstling, Steven S.
    Chen, Felicia
    Ubel, Peter A.
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2024, 26
  • [18] Using Natural Language Processing to Predict Fatal Drug Overdose From Autopsy Narrative Text: Algorithm Development and Validation Study
    Tang, Leigh Anne
    Korona-Bailey, Jessica
    Zaras, Dimitrios
    Roberts, Allison
    Mukhopadhyay, Sutapa
    Espy, Stephen
    Walsh, Colin G.
    JMIR PUBLIC HEALTH AND SURVEILLANCE, 2023, 9
  • [19] Development and testing of a multi-lingual Natural Language Processing-based deep learning system in 10 languages for COVID-19 pandemic crisis: A multi-center study
    Yang, Lily Wei Yun
    Ng, Wei Yan
    Lei, Xiaofeng
    Tan, Shaun Chern Yuan
    Wang, Zhaoran
    Yan, Ming
    Pargi, Mohan Kashyap
    Zhang, Xiaoman
    Lim, Jane Sujuan
    Gunasekeran, Dinesh Visva
    Tan, Franklin Chee Ping
    Lee, Chen Ee
    Yeo, Khung Keong
    Tan, Hiang Khoon
    Ho, Henry Sun Sien
    Tan, Benedict Wee Bor
    Wong, Tien Yin
    Kwek, Kenneth Yung Chiang
    Goh, Rick Siow Mong
    Liu, Yong
    Ting, Daniel Shu Wei
    FRONTIERS IN PUBLIC HEALTH, 2023, 11
  • [20] Natural language processing for the development of a clinical registry: a validation study in intraductal papillary mucinous neoplasms
    Al-Haddad, Mohammad A.
    Friedlin, Jeff
    Kesterson, Joe
    Waters, Joshua A.
    Aguilar-Saavedra, Juan R.
    Schmidt, C. Max
    HPB, 2010, 12 (10) : 688 - 695