STILLBIRTH AND STIGMA: THE SPOILING AND REPAIR OF MULTIPLE SOCIAL IDENTITIES

被引:48
作者
Brierley-Jones, Lyn [1 ]
Crawley, Rosalind [1 ]
Lomax, Samantha [1 ]
Ayers, Susan [2 ]
机构
[1] Univ Sunderland, Sunderland SR2 7EE, Durham, England
[2] City Univ London, London, England
关键词
POSTTRAUMATIC-STRESS-DISORDER; PERINATAL DEATH; NEONATAL DEATH; PREGNANCY LOSS; MATERNAL ANXIETY; MENTAL-HEALTH; PARENTS; MOTHERS; GRIEF; BIRTH;
D O I
10.2190/OM.70.2.a
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
This study investigated mothers' experiences surrounding stillbirth in the United Kingdom, their memory making and sharing opportunities, and the effect these opportunities had on them. Qualitative data were generated from free text responses to open-ended questions. Thematic content analysis revealed that "stigma" was experienced by most women and Goffman's (1963) work on stigma was subsequently used as an analytical framework. Results suggest that stillbirth can spoil the identities of "patient," "mother," and "full citizen." Stigma was reported as arising from interactions with professionals, family, friends, work colleagues, and even casual acquaintances. Stillbirth produces common learning experiences often requiring "identity work" (Murphy, 2012). Memory making and sharing may be important in this work and further research is needed. Stigma can reduce the memory sharing opportunities for women after stillbirth and this may explain some of the differential mental health effects of memory making after stillbirth that is documented in the literature.
引用
收藏
页码:143 / 168
页数:26
相关论文
共 76 条
[21]   THE PSYCHOLOGICAL EFFECTS OF A STILLBIRTH ON SURVIVING FAMILY MEMBERS [J].
DEFRAIN, J ;
MARTENS, L ;
STORK, J ;
STORK, W .
OMEGA-JOURNAL OF DEATH AND DYING, 1991, 22 (02) :81-108
[22]   Bereaved parents' experience of stillbirth in UK hospitals: a qualitative interview study [J].
Downe, Soo ;
Schmidt, Ellie ;
Kingdon, Carol ;
Heazell, Alexander E. P. .
BMJ OPEN, 2013, 3 (02)
[23]   Seeing and holding a stillborn baby: Mothers' feelings in relation to how their babies were presented to them after birth-Findings from an online questionnaire [J].
Erlandsson, Kerstin ;
Warland, Jane ;
Cacciatore, Joanne ;
Radestad, Ingela .
MIDWIFERY, 2013, 29 (03) :246-250
[24]   Speaking silence: The social construction of silence in autobiographical and cultural narratives [J].
Fivush, Robyn .
MEMORY, 2010, 18 (02) :88-98
[25]   Major risk factors for stillbirth in high-income countries: a systematic review and meta-analysis [J].
Flenady, Vicki ;
Koopmans, Laura ;
Middleton, Philippa ;
Froen, J. Frederik ;
Smith, Gordon C. ;
Gibbons, Kristen ;
Coory, Michael ;
Gordon, Adrienne ;
Ellwood, David ;
McIntyre, Harold David ;
Fretts, Ruth ;
Ezzati, Majid .
LANCET, 2011, 377 (9774) :1331-1340
[26]  
FOA EB, 1993, J TRAUMA STRESS, V6, P459, DOI 10.1002/jts.2490060405
[27]   Stillbirths 1 Stillbirths: why they matter [J].
Froen, J. Frederik ;
Cacciatore, Joanne ;
McClure, Elizabeth M. ;
Kuti, Oluwafemi ;
Jokhio, Abdul Hakeem ;
Islam, Monir ;
Shiffman, Jeremy .
LANCET, 2011, 377 (9774) :1353-1366
[28]  
Godel M., 2007, Visual Studies, V22, P253, DOI [10.1080/14725860701657159, DOI 10.1080/14725860701657159]
[29]   Internet Message Boards for Pregnancy Loss: Who's On-Line and Why? [J].
Gold, Katherine J. ;
Boggs, Martha E. ;
Mugisha, Emeline ;
Palladino, Christie Lancaster .
WOMENS HEALTH ISSUES, 2012, 22 (01) :E67-E72
[30]   The myth of the replacement child: Parents' stories and practices after perinatal death [J].
Grout, LA ;
Romanoff, BD .
DEATH STUDIES, 2000, 24 (02) :93-113