Young people's experiences using electric powered indoor-outdoor wheelchairs (EPIOCs): Potential for enhancing users' development?

被引:71
作者
Evans, Subhadra
Neophytou, Claudius
De Souza, Lorraine
Frank, Andrew O.
机构
[1] Brunel Univ, Sch Hlth & Social Care, Uxbridge UB8 3PH, Middx, England
[2] Royal Natl Orthopaed Hosp, Stanmore Specialist Wheelchair Serv, Stanmore HA7 4LP, Middx, England
关键词
powered wheelchairs; muscular dystrophy; cerebral palsy; sport; safety; accidents; carers; pain; user satisfaction;
D O I
10.1080/09638280600964406
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose. To examine the experiences of severely physically disabled young people who use electric powered indoor outdoor chairs (EPIOCs). Methods. A priori interview questions examined young people's functioning with EPIOCs, pain and discomfort with EPIOC use and accidents or injuries resulting from EPIOC use. Eighteen young people (13 males and five females) aged 10-18 (mean 15) years were interviewed by telephone using a qualitative framework approach. Participants were interviewed 10-19 (mean 14.5) months after delivery of the chair. Diagnoses included muscular dystrophy (n 10), cerebral palsy (n 5), and 'other' (n 3). Results. Many children reported positive functioning following EPIOC use, including increased independence and social activities like wheelchair football. However, EPIOC use was also associated with pain and discomfort, as well as perceived lack of safety, and minor accidents. Most young people and their families were fairly satisfied with the service and provision of their wheelchairs. Conclusions. The findings suggest that the development of disabled young people may benefit from the use of electric powered indoor/outdoor wheelchairs, although the advantages may come at certain costs to young people's perceived and real safety. Recommendations to powered wheelchair providers include the demonstrated need for additional driving training as these young people mature.
引用
收藏
页码:1281 / 1294
页数:14
相关论文
共 30 条
[1]  
Aldersea P., 1999, BR J THER REHABIL, V6, P408
[2]  
*AUD COMM WHEELCH, 2000, FULL EQU PROV EQUIP
[3]  
Baltes P. B., 2007, HDB CHILD PSYCHOL, P1029, DOI [10.1002/9780470147658.chpsy0111, DOI 10.1002/9780470147658.CHPSY0111]
[4]   Adolescents' implicit theories of maturity: Ages of adulthood, freedom, and fun [J].
Barker, ET ;
Galambos, NL .
JOURNAL OF ADOLESCENT RESEARCH, 2005, 20 (05) :557-576
[5]   Survey of the use of transport by recipients of a regional Electric Indoor/Outdoor Powered (EPIOC) wheelchair service [J].
Belcher, MJH ;
Frank, AO .
DISABILITY AND REHABILITATION, 2004, 26 (10) :563-575
[6]   Powered wheelchairs and independence in young children with tetraplegia [J].
Bottos, M ;
Bolcati, C ;
Sciuto, L ;
Ruggeri, C ;
Feliciangeli, A .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2001, 43 (11) :769-777
[7]   EFFECTS OF POWERED MOBILITY ON SELF-INITIATED BEHAVIORS OF VERY YOUNG-CHILDREN WITH LOCOMOTOR DISABILITY [J].
BUTLER, C .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 1986, 28 (03) :325-332
[8]   FATAL WHEELCHAIR-RELATED ACCIDENTS IN THE UNITED-STATES [J].
CALDER, CJ ;
KIRBY, RL .
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 1990, 69 (04) :184-190
[9]   Differential effects of support providers on adolescents' mental health [J].
Colarossi, LG ;
Eccles, JS .
SOCIAL WORK RESEARCH, 2003, 27 (01) :19-30
[10]  
Cox D. L., 2003, British Journal of Occupational Therapy, V66, P219