Patient-reported outcomes (PROs) report patients' assessments of the impact of a health condition and its treatment, and can promote patient-centered care. Objectives: To address the effectiveness of graphic display of PRO data in clinical practice by reviewing existing literature, and current recommendations, regarding graphic presentations of PROs. Methods: We performed an integrated literature review to identify themes and emerging principles guiding effective graphic display of PRO data. The findings were placed in the context of the literature informing graphical presentation of other clinical data. Results: Although a large body of literature informs graphical presentation of clinical data, only nine empirical studies addressed presentation of PROs. Four major themes emerged: many patients and most clinicians can accurately interpret some PRO graphs; interpretation accuracy, personal preference, and perceived level of understanding are sometimes discordant; patient age and education may predict PRO graph comprehension; patients tend to prefer simpler graphs than do clinicians. Conclusions: Little empirical research specifically addresses graphic representation of PRO data. A single format may not work optimally for both clinicians and patients. Practice implications: Patients and clinicians may or may not comprehend PRO data when graphically presented. Further research to determine best practices for presenting PROs optimally is needed. (C) 2015 Elsevier Ireland Ltd. All rights reserved.
机构:
Univ Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Univ York, York Trials Unit, York YO10 5DD, N Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Cocks, K.
Velikova, G.
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Univ Leeds, Leeds Inst Mol Med, St Jamess Inst Oncol, Leeds, W Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Velikova, G.
King, M. T.
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h-index: 0
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Univ Sydney, Qual Life Off, Psychooncol Cooperat Res Grp, Sydney, NSW 2006, AustraliaUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
King, M. T.
Fayers, P. M.
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h-index: 0
机构:
Univ Aberdeen, Inst Appl Hlth Sci, Sch Med & Dent, Aberdeen, Scotland
NTNU, Fac Med, Dept Canc Res & Mol Med, Trondheim, NorwayUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Fayers, P. M.
Brown, J. M.
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h-index: 0
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Univ Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
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Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Engelen, Vivian
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Haverman, Lotte
Koopman, Hendrik
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h-index: 0
机构:Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Koopman, Hendrik
Schouten-van Meeteren, Netteke
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Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Dept Paediat Oncol, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Schouten-van Meeteren, Netteke
Meijer-van den Bergh, Esther
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Radboud Univ Nijmegen Med Ctr, Dept Paediat Oncol, Nijmegen, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Meijer-van den Bergh, Esther
Vrijmoet-Wiersma, Jantien
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h-index: 0
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Leiden Univ, Med Ctr, Dept Paediat Oncol, Leiden, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Vrijmoet-Wiersma, Jantien
van Dijk, Elisabeth Maria
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h-index: 0
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Vrije Univ Amsterdam Med Ctr, Dept Paediat Oncol, Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
van Dijk, Elisabeth Maria
Last, Bob
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Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Last, Bob
Detmar, Symone
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h-index: 0
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TNO Prevent & Hlth, Leiden, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Detmar, Symone
Grootenhuis, Martha
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h-index: 0
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Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
机构:
Univ Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Univ York, York Trials Unit, York YO10 5DD, N Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Cocks, K.
Velikova, G.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Leeds, Leeds Inst Mol Med, St Jamess Inst Oncol, Leeds, W Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Velikova, G.
King, M. T.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Sydney, Qual Life Off, Psychooncol Cooperat Res Grp, Sydney, NSW 2006, AustraliaUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
King, M. T.
Fayers, P. M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Aberdeen, Inst Appl Hlth Sci, Sch Med & Dent, Aberdeen, Scotland
NTNU, Fac Med, Dept Canc Res & Mol Med, Trondheim, NorwayUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
Fayers, P. M.
Brown, J. M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, EnglandUniv Leeds, Clin Trials Res Unit, Leeds, W Yorkshire, England
机构:
Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Engelen, Vivian
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机构:
Haverman, Lotte
Koopman, Hendrik
论文数: 0引用数: 0
h-index: 0
机构:Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Koopman, Hendrik
Schouten-van Meeteren, Netteke
论文数: 0引用数: 0
h-index: 0
机构:
Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Dept Paediat Oncol, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Schouten-van Meeteren, Netteke
Meijer-van den Bergh, Esther
论文数: 0引用数: 0
h-index: 0
机构:
Radboud Univ Nijmegen Med Ctr, Dept Paediat Oncol, Nijmegen, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Meijer-van den Bergh, Esther
Vrijmoet-Wiersma, Jantien
论文数: 0引用数: 0
h-index: 0
机构:
Leiden Univ, Med Ctr, Dept Paediat Oncol, Leiden, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Vrijmoet-Wiersma, Jantien
van Dijk, Elisabeth Maria
论文数: 0引用数: 0
h-index: 0
机构:
Vrije Univ Amsterdam Med Ctr, Dept Paediat Oncol, Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
van Dijk, Elisabeth Maria
Last, Bob
论文数: 0引用数: 0
h-index: 0
机构:
Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Last, Bob
Detmar, Symone
论文数: 0引用数: 0
h-index: 0
机构:
TNO Prevent & Hlth, Leiden, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands
Detmar, Symone
Grootenhuis, Martha
论文数: 0引用数: 0
h-index: 0
机构:
Univ Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, NetherlandsUniv Amsterdam, Acad Med Ctr, Emma Childrens Hosp, Paediat Psychosocial Dept, NL-1105 AZ Amsterdam, Netherlands