Ethical Research Practice or Undue Influence? Symbolic Power in Community- and Individual-Level Informed Consent Processes in Community-Based Participatory Research in Swaziland

被引:14
作者
Brear, Michelle [1 ,2 ]
机构
[1] Univ Free State, Transdisciplinary Afromontane Res Unit, Phuthaditjaba, South Africa
[2] Monash Univ, Clayton, Vic, Australia
关键词
voluntary informed consent; community consent; CBPR; symbolic power; ethnographic research; DILEMMAS;
D O I
10.1177/1556264618761268
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
In community-based participatory research (CBPR), community-level consent is assumed to enhance ethical rigor, when obtained prior to individual informed consent. However, community leaders' permission to conduct research may influence individuals' agency to decline participation. This article presents findings of a Bourdieusian analysis of ethnographic data documenting CBPR in rural Swaziland. The findings reveal that the symbolic power of leaders who provide community-level consent constrains individual agency and reproduces existing relations of power, if individual informed consent is simply a procedure. However, when informed consent is a process that introduces notions of autonomy and rights, it can disrupt power relations. Implications for ethical CBPR practice, and ethnography's value for developing theory from real-world research ethics practice, are discussed.
引用
收藏
页码:311 / 322
页数:12
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