Community Health Workers as Support for Sickle Cell Care

被引：50

作者：

Hsu, Lewis L. ^{[1
]}

Green, Nancy S. ^{[2
]}

Ivy, E. Donnell ^{[3
]}

Neunert, Cindy E. ^{[2
]}

Smaldone, Arlene ^{[2
]}

Johnson, Shirley ^{[4
]}

Castillo, Sheila ^{[1
]}

Castillo, Amparo ^{[1
]}

Thompson, Trevor ^{[5
]}

Hampton, Kisha ^{[6
]}

Strouse, John J. ^{[7
]}

Stewart, Rosalyn ^{[7
]}

Hughes, TaLana ^{[8
]}

Banks, Sonja ^{[9
]}

Smith-Whitley, Kim ^{[10
]}

King, Allison ^{[11
]}

Brown, Mary ^{[12
]}

Ohene-Frempong, Kwaku ^{[10
]}

Smith, Wally R. ^{[4
]}

Martin, Molly ^{[1
]}

机构：

[1] Univ Illinois, Dept Pediat, Chicago, IL USA

[2] Columbia Univ, Dept Pediat, New York, NY 10027 USA

[3] US Hlth Resources & Serv Adm, Rockville, MD 20857 USA

[4] Virginia Commonwealth Univ, Dept Med, Med Coll Virginia Campus, Richmond, VA 23298 USA

[5] Sickle Cell Dis Fdn Tennessee, Memphis, TN USA

[6] Indiana Hemophilia & Thrombosis Ctr, Indianapolis, IN USA

[7] Johns Hopkins Univ, Sch Med, Dept Pediat, Baltimore, MD 21205 USA

[8] Sickle Cell Dis Assoc Illinois, Chicago, IL USA

[9] Sickle Cell Dis Assoc Amer, Baltimore, MD USA

[10] Childrens Hosp Philadelphia, Dept Pediat, Philadelphia, PA 19104 USA

[11] Washington Univ, Dept Pediat, St Louis, MO 63130 USA

[12] Sickle Cell Dis Fdn Calif, Los Angeles, CA USA

来源：

AMERICAN JOURNAL OF PREVENTIVE MEDICINE | 2016年 / 51卷 / 01期

关键词：

QUALITY-OF-LIFE; PERCEIVED DISCRIMINATION; CONTROLLED-TRIAL; DIABETES CARE; DISEASE; CHILDREN; ADULTS; INTERVENTIONS; HOME; PAIN;

D O I：

10.1016/j.amepre.2016.01.016

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Community health workers are increasingly recognized as useful for improving health care and health outcomes for a variety of chronic conditions. Community health workers can provide social support, navigation of health systems and resources, and lay counseling. Social and cultural alignment of community health workers with the population they serve is an important aspect of community health worker intervention. Although community health worker interventions have been shown to improve patient-centered outcomes in underserved communities, these interventions have not been evaluated with sickle cell disease. Evidence from other disease areas suggests that community health worker intervention also would be effective for these patients. Sickle cell disease is complex, with a range of barriers to multifaceted care needs at the individual, family/friend, clinical organization, and community levels. Care delivery is complicated by disparities in health care: access, delivery, services, and cultural mismatches between providers and families. Current practices inadequately address or provide incomplete control of symptoms, especially pain, resulting in decreased quality of life and high medical expense. The authors propose that care and care outcomes for people with sickle cell disease could be improved through community health worker case management, social support, and health system navigation. This paper outlines implementation strategies in current use to test community health workers for sickle cell disease management in a variety of settings. National medical and advocacy efforts to develop the community health workforce for sickle cell disease management may enhance the progress and development of "best practices" for this area of community-based care. (C) 2016 American Journal of Preventive Medicine. Published by Elsevier Inc.

引用

页码：S87 / S98

页数：12

共 97 条

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