Research With Vulnerable Families Caring for Children With Life-Limiting Conditions

被引：34

作者：

Stevens, Michael M. ^{[1
]}

Lord, Bruce A.

Proctor, Marie-Therese

Nagy, Sue ^{[2
]}

O'Riordan, Elizabeth

机构：

[1] Childrens Hosp Westmead, Oncol Unit, Sydney, NSW 2145, Australia

[2] Univ Technol Sydney, Sydney, NSW 2007, Australia

来源：

QUALITATIVE HEALTH RESEARCH | 2010年 / 20卷 / 04期

关键词：

children; illness and disease; confidentiality; participant; data collection and management; families; caregiving; interviews; qualitative methods; general; research; access to participants; interdisciplinary; vulnerable populations; QUALITATIVE RESEARCH; UNCHARTED TERRITORY; PARENTS; HOSPICE; CANCER; STRATEGIES; ISSUES; DIAGNOSIS; PROGRAM;

D O I：

10.1177/1049732309356097

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Methodological challenges associated with sensitive research, such as research with vulnerable families, have been well described, but there are few examples of how such challenges have been addressed in specific projects. To help address this gap, we describe how we designed and conducted a qualitative study of 91 members of 29 families caring for children or young people with life-limiting conditions. Although some issues associated with researching sensitive topics were anticipated, others were encountered that were not expected. We discuss insights gained from this study in relation to factors that influence effectiveness of recruitment, the quality of data collection, and the safety of participants and researchers.

引用

页码：496 / 505

页数：10

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