A new data management system for the French National Registry of human alveolar echinococcosis cases

被引：18

作者：

Charbonnier, Amandine ^{[1
,2
]}

Knapp, Jenny ^{[1
,3
]}

Demonmerot, Florent ^{[1
,3
]}

Bresson-Hadni, Solange ^{[1
,3
]}

Raoul, Francis ^{[1
,3
]}

Grenouillet, Frederic ^{[1
,3
]}

Millon, Laurence ^{[1
,3
]}

Vuitton, Dominique Angele ^{[1
,3
]}

Damy, Sylvie ^{[1
]}

机构：

[1] Univ Franche Comte, UMR CNRS 6249, Lab Chrono Environm, F-25000 Besancon, France

[2] OSU THETA Franche Comte Bourgogne, F-25000 Besancon, France

[3] CHU Besancon, Natl Reference Ctr Alveolar Echinococcosis, FrancEchino Network, WHO Collaborating Ctr Prevent & Treatment Human A, F-25000 Besancon, France

来源：

PARASITE | 2014年 / 21卷

关键词：

Alveolar echinococcosis; Registry; Database; Interoperability of data;

D O I：

10.1051/parasite/2014075

中图分类号：

R38 [医学寄生虫学]; Q [生物科学];

学科分类号：

07 ; 0710 ; 09 ; 100103 ;

摘要：

Alveolar echinococcosis (AE) is an endemic zoonosis in France due to the cestode Echinococcus multilocularis. The French National Reference Centre for Alveolar Echinococcosis (CNR-EA), connected to the FrancEchino network, is responsible for recording all AE cases diagnosed in France. Administrative, epidemiological and medical information on the French AE cases may currently be considered exhaustive only on the diagnosis time. To constitute a reference data set, an information system (IS) was developed thanks to a relational database management system (MySQL language). The current data set will evolve towards a dynamic surveillance system, including follow-up data (e. g. imaging, serology) and will be connected to environmental and parasitological data relative to E. multilocularis to better understand the pathogen transmission pathway. A particularly important goal is the possible interoperability of the IS with similar European and other databases abroad; this new IS could play a supporting role in the creation of new AE registries.

引用

页数：6

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