Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population

被引:10
作者
Llewellyn, Alison M. [1 ]
Skevington, Suzanne M. [2 ]
机构
[1] Univ W England, Ctr Hlth & Clin Res, Fac Hlth & Appl Sci, Glenside Campus,Blackberry Hill, Bristol BS16 1DD, Avon, England
[2] Univ Manchester, Sch Psychol Sci, Manchester Ctr Hlth Psychol, Fac Med & Human Sci, Manchester M13 9PL, Lancs, England
关键词
Quality of life; Importance; Feedback; Individual; Healthcare; Community; REPORTED OUTCOME MEASURES; RANDOMIZED CONTROLLED-TRIAL; ONCOLOGY; ASSESSMENTS; COMMUNICATION; INFORMATION; IMPROVE; IMPACT; ADULTS;
D O I
10.1007/s11136-015-1132-2
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
We conducted an evaluation to find out how a novel quality of life (QoL) intervention containing guided individualized feedback was appraised. The importance of QoL was matched with QoL assessment for each subjective dimension, using graphical feedback. We examined whether this information was acceptable, feasible and valued beyond the clinical context, among the community. Using a mixed-methods cross-sectional design, the intervention was piloted with 129 participants from communities and registered in primary care. WHOQOL-BREF and WHOQOL Importance scores were graphically matched by dimension. Results were inspected and interpreted with directed guidance to identify good and poor QoL. We report the post-intervention evaluation of feedback, including qualitative themes. Follow-up interviews among those expecting feedback to be helpful explored potential self-management and healthcare uses. After feedback, 65 % reported changes in thoughts and perceptions of QoL, often describing insights as self-affirming. Goals or expectations changed for 34 %, and motivation to change was reported. Over 50 % evaluated the feedback as helpful in the short term or for the future. Follow-up interviews endorsed the value of the feedback and its usefulness in sharing with a healthcare professional (92 %), suggesting it would facilitate professionals' understandings of patients and enable health advice to be targeted. The benefits of using this novel feedback can be extended to the general population, as directed guidance aids interpretation, thereby saving health service costs. This complex pilot intervention needs testing in a blinded fully randomized controlled trial. Beyond independent self-management, graphs could be used during clinical decision-making.
引用
收藏
页码:605 / 614
页数:10
相关论文
共 35 条
[1]  
[Anonymous], 2010, ICD10M
[2]  
[Anonymous], PREDICTING HLTH BEHA
[3]   Assessment of palliative care cancer patients' most important concerns [J].
Baile, Walter F. ;
Palmer, J. Lynn ;
Bruera, Eduardo ;
Parker, Patricia A. .
SUPPORTIVE CARE IN CANCER, 2011, 19 (04) :475-481
[4]   Physicians' knowledge of health-related quality of life and perception of its importance in daily clinical practice [J].
Bossola, Maurizio ;
Murri, Rita ;
Onder, Graziano ;
Turriziani, Adriana ;
Fantoni, Massimo ;
Padua, Luca .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2010, 8
[5]   The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research [J].
Boyce, Maria B. ;
Browne, John P. ;
Greenhalgh, Joanne .
BMJ QUALITY & SAFETY, 2014, 23 (06) :508-518
[6]  
Carver C.S., 2008, On the self-regulation of behavior, DOI DOI 10.1017/CBO9781139174794
[7]   CONTROL-THEORY - A USEFUL CONCEPTUAL-FRAMEWORK FOR PERSONALITY-SOCIAL, CLINICAL, AND HEALTH PSYCHOLOGY [J].
CARVER, CS ;
SCHEIER, MF .
PSYCHOLOGICAL BULLETIN, 1982, 92 (01) :111-135
[8]  
da Rocha NS, 2011, REV PSIQ CLIN-BRAZIL, V38, P19
[9]   Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being - A randomized controlled trial [J].
De Wit, Marrtje ;
De Waal, Henriette A. Delemarre-Van ;
Bokma, Jan Alle ;
Haasnoot, Krijn ;
Houdijk, Mieke C. ;
Gemke, Reinoud J. ;
Snoek, Frank J. .
DIABETES CARE, 2008, 31 (08) :1521-1526
[10]  
Department of Health, 2011, OP FRAM NHS ENGL 201