'You don't make genetic test decisions from one day to the next' - Using time to preserve moral space

被引:33
作者
Scully, Jackie Leach [1 ]
Porz, Rouven [1 ]
Rehmann-Sutter, Christoph [1 ]
机构
[1] Newcastle Univ, Sch Geog Polit & Sociol, Newcastle Upon Tyne NE1 7RU, Tyne & Wear, England
关键词
genetic testing; prenatal testing; Huntington's disease; cancer; decision making; qualitative research; ethics;
D O I
10.1111/j.1467-8519.2007.00546.x
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient-centred approach, combining empirical research methods with normative ethical analysis to investigate the patients' experience of time in (i) prenatal testing of a foetus for a genetic condition, (ii) predictive or diagnostic testing for breast and colon cancer, or (iii) testing for Huntington's disease (HD). We found that participants often manipulated their experience of time, either using a stepwise process of microdecisions to extend it or, under the time pressure of pregnancy, changing their temporal 'depth of field'. We discuss the implications of these strategies for normative concepts of moral agency, and for clinical ethics.
引用
收藏
页码:208 / 217
页数:10
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