TOwards enhancing Paediatric Intensive Care for Children with Medical Complexity (ToPIC CMC): a mixed-methods study protocol using Experience-based Co-design

被引：4

作者：

Rennick, Janet ^{[1
,2
,3
]}

Buchanan, Francine ^{[4
]}

Cohen, Eyal ^{[5
,6
,7
]}

Carnevale, Franco ^{[2
]}

Dryden-Palmer, Karen ^{[8
,9
]}

Fontela, Patricia ^{[3
]}

Patel, Hema ^{[3
,10
]}

Razack, Saleem ^{[3
,11
]}

St-Sauveur, Isabelle ^{[2
,12
]}

Law, Susan ^{[7
,13
]}

机构：

[1] McGill Univ Hlth Ctr, Montreal Childrens Hosp, Dept Nursing, Montreal, PQ, Canada

[2] McGill Univ, Ingram Sch Nursing, Montreal, PQ, Canada

[3] McGill Univ, Dept Pediat, Montreal, PQ, Canada

[4] Hosp Sick Children, Child Hlth & Evaluat Sci, Toronto, ON, Canada

[5] Hosp Sick Children, Div Pediat Med, Toronto, ON, Canada

[6] Univ Toronto, Edwin SH Leong Ctr Hlth Children, Dept Pediat, Toronto, ON, Canada

[7] Univ Toronto, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada

[8] Hosp Sick Children, Pediat Intens Care Unit, Toronto, ON, Canada

[9] Hosp Sick Children, Ctr Safety Res, Res Inst, Child Hlth Evaluat Sci, Toronto, ON, Canada

[10] McGill Univ Hlth Ctr, Div Gen Pediat, Montreal, PQ, Canada

[11] McGill Univ, Inst Hlth Sci Educ, Montreal, PQ, Canada

[12] McGill Univ Hlth Ctr, Montreal Childrens Hosp, Intermediate Complex Coordinat & Nav I CCAN Serv, Pediat Day Ctr, Montreal, PQ, Canada

[13] Trillium Hlth Partners, Inst Better Hlth, Mississauga, ON, Canada

来源：

BMJ OPEN | 2022年 / 12卷 / 09期

基金：

加拿大健康研究院;

关键词：

Paediatric intensive & critical care; MEDICAL EDUCATION & TRAINING; EDUCATION & TRAINING (see Medical Education & Training); FAMILY-CENTERED CARE; PATIENT; UNIT; PREVALENCE; DISABILITY; IMPROVE; IMPACT;

D O I：

10.1136/bmjopen-2022-066459

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Introduction Advances in medical technology and postoperative care have led to increased survival of children with medical complexity (CMC). Parents of CMC develop substantial caregiver expertise and familiarity with paediatric intensive care unit (PICU) staff and treatment procedures which may give rise to tensions regarding respective roles, caretaking preferences, treatment goals and expected outcomes. A therapeutic alliance built through strong partnerships constitutes the foundation of patient and family-centred care (PFCC), contributing to improvements in experiences and outcomes. Yet acute care settings continue to struggle with integrating PFCC into practice. This study aims to enhance PFCC for CMC in the PICU using an innovative approach to integrated knowledge translation. Methods A mixed-method concurrent triangulation design will be used to develop, implement and evaluate PFCC practice changes for CMC in the PICU. Qualitative data will be collected using an Experience-based Co-design (EBCD) approach. Parents, CMC and staff will reflect on their PICU care experiences (stages 1 and 2), identify priorities for improvement (stage 3), devise strategies to implement changes (stage 4), evaluate practice changes and study process, and disseminate findings (stage 5). The quantitative arm will consist of a prepractice and postpractice change evaluation, compared with a control site. Analysis of qualitative and quantitative data will provide insights regarding the impact of PICU practice changes on PFCC. Ethics and dissemination The McGill University Health Centre Research Ethics Board (Ref. #2019-5021) and the Hospital for Sick Children Research Ethics Board (Ref. #1000063801) approved the study. Knowledge users and researchers will be engaged as partners throughout the study as per our participatory approach. Knowledge products will include a short film featuring themes and video/audio clips from the interviews, recommendations for improvements in care, and presentations for healthcare leaders and clinical teams, in addition to traditional academic outputs such as conference presentations and publications.

引用

页数：8

共 53 条

[1] Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool [J].