Mapping Experiences of Serodiscordance: Using Visual Methodologies to Construct Relationality in Families Living With or Affected by Stigmatized Infectious Disease

被引:7
作者
Drysdale, Kerryn [1 ]
Newman, Christy E. [1 ]
Persson, Asha [1 ]
Gray, Rebecca M. [1 ]
机构
[1] UNSW Sydney, Ctr Social Res Hlth, Sydney, NSW 2052, Australia
基金
澳大利亚研究理事会;
关键词
HIV; hepatitis C; hepatitis B; families; visual methodologies; spatializing; relationality; serodiscordance; qualitative interviewing; Australia; QUALITY-OF-LIFE; CHRONIC ILLNESS; HIV; HEALTH; COUPLES; PEOPLE; CAREGIVERS; IMPACT; MANAGEMENT; INTERVIEW;
D O I
10.1177/1049732319890304
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The "my health, our family" research project was established to document stories of what serodiscordance (mixed infection status) means for Australian families affected by HIV, hepatitis B, and/or hepatitis C. A family mapping exercise was developed for the start of interviews as a way to conceptualize serodiscordance as a movement of "closeness" and "distance" within the relational networks that participants defined as "family," the outcome of which was originally intended as a guide to explore the contributions of each family member in the in-depth qualitative interviews that followed. Such static representations of family were soon revealed to be inadequate for capturing the contingent, flexible, and multifaceted nature of familial relationality in the management of these infections. In this article, we explore these shifts for the conceptual openness mapping methods facilitate, and the constraints they reveal, for spatializing family relations in ways that heed diverse experiences of serodiscordance.
引用
收藏
页码:793 / 808
页数:16
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