Ethical Issues Around Pediatric Death Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

被引:5
作者
Barone, Silvana [1 ]
Unguru, Yoram [2 ,3 ]
机构
[1] Johns Hopkins Univ, Johns Hopkins Hosp, Div Gen Pediat & Adolescent Med, Berman Inst Bioeth, 200 North Wolfe St, Baltimore, MD 21287 USA
[2] Herman & Walter Samuelson Childrens Hosp Sinai, Div Pediat Hematol Oncol, 2401 West Belvedere Ave, Baltimore, MD 21215 USA
[3] Johns Hopkins Univ, Berman Inst Bioeth, 1809 Ashland Ave, Baltimore, MD 21205 USA
关键词
Consent; Assent; Death; Life-sustaining medical treatment; Adolescents; Decision-making; ADOLESCENT BRAIN; PALLIATIVE CARE; CHRONIC ILLNESS; CHILDREN; MINORS; STANDARD; MATURE; COMPETENT; THRESHOLD; DECISIONS;
D O I
10.1016/j.chc.2018.05.009
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.
引用
收藏
页码:539 / +
页数:14
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