Omics research ethics considerations

被引：13
|
作者：
Williams, Janet K. [1 ]
Anderson, Cindy M. [2 ]
机构：
[1] Univ Iowa, Coll Nursing, 50 Newton Rd, Iowa City, IA 52242 USA
[2] Ohio State Univ, Coll Nursing, Columbus, OH 43210 USA
来源：
NURSING OUTLOOK | 2018年 / 66卷 / 04期
关键词：
Omics; Research; Ethics; Nursing; PRECISION MEDICINE RESEARCH; COMMON RULE; HEALTH; SCIENCE; DETERMINANTS; PARTICIPANTS; INFORMATION; GENOMICS; CONSENT; RETURN;
D O I：
10.1016/j.outlook.2018.05.003
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Background: Pending revisions to the Common Rule include topics consistent with respect for persons, justice, and beneficence for research subjects in studies using omics technologies and are relevant to omics research. Purpose: Synthesize trends in bioethics, precision health, and omics nursing science for novice and experienced nursing scholars from which to consider bioethics questions. Methods: Review topics addressed in the National Institute of Nursing Research (NINR) strategic plan, Common Rule pending revisions, and publications regarding human subjects protection policies. Discussion: Omics research involves decisions regarding understandable informed consent, broad consent, data sharing, trust, equal benefit, equal access, societal variables, privacy, data security, and return of findings to participants. Conclusion: Principles of respect for persons, justice, and beneficence as articulated in the Belmont report and reflected in the American Nurses Association (ANA) Code of Ethics provide guidance for human subjects protection procedures to advance omics and nursing science.
引用
收藏
页码：386 / 393
页数：8
相关论文
共 50 条
  • [41] Ethics in pediatric research
    Kurz, R
    MONATSSCHRIFT KINDERHEILKUNDE, 2003, 151 (12) : 1276 - 1281
  • [42] Ethics in Research and Publications
    Kambhampati, Srinivas B. S.
    Menon, Jagdish
    Maini, Lalit
    INDIAN JOURNAL OF ORTHOPAEDICS, 2023, 57 (11) : 1722 - 1734
  • [43] The Ethics of Clinical Research
    Chung, Kevin C.
    Kotsis, Sandra V.
    JOURNAL OF HAND SURGERY-AMERICAN VOLUME, 2011, 36A (02): : 308 - 315
  • [44] THE ETHICS OF RESEARCH IN CYBERSPACE
    JONES, RA
    INTERNET RESEARCH-ELECTRONIC NETWORKING APPLICATIONS AND POLICY, 1994, 4 (03): : 30 - 35
  • [45] Ethics and research with undergraduates
    Richman, Kenneth A.
    Alexander, Leslie B.
    ETHICS AND EDUCATION, 2006, 1 (02) : 163 - 175
  • [46] Ethics in Research and Publications
    Srinivas B. S. Kambhampati
    Jagdish Menon
    Lalit Maini
    Indian Journal of Orthopaedics, 2023, 57 : 1722 - 1734
  • [47] The ethics of paediatric research
    Spriggs, Merle
    Caldwell, Patrina H. Y.
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2011, 47 (09) : 664 - 667
  • [48] Science, ethics and the regulation of alcohol and other drug research
    Cvetkovski, Stefan
    Fry, Craig L.
    INTERNATIONAL JOURNAL OF DRUG POLICY, 2006, 17 (05) : 450 - 452
  • [49] Addressing Conflicts in Research Ethics: Consent and Risk of Harm
    Sim, Julius
    PHYSIOTHERAPY RESEARCH INTERNATIONAL, 2010, 15 (02) : 80 - 87
  • [50] Advocating the rights of people with dementia to contribute to research: Considerations for researchers and ethics committees
    O'Connor, Claire M. C.
    Liddle, Jacki
    O'Reilly, Maria
    Meyer, Claudia
    Cartwright, Jade
    Chisholm, Marita
    Conway, Erin
    Fielding, Elaine
    Fox, Amanda
    MacAndrew, Margaret
    Schnitker, Linda
    Travers, Catherine
    Watson, Karen
    While, Christine
    Bail, Kasia
    AUSTRALASIAN JOURNAL ON AGEING, 2022, 41 (02) : 309 - 313
12345