Omics research ethics considerations

被引：13

作者：

Williams, Janet K. ^{[1
]}

Anderson, Cindy M. ^{[2
]}

机构：

[1] Univ Iowa, Coll Nursing, 50 Newton Rd, Iowa City, IA 52242 USA

[2] Ohio State Univ, Coll Nursing, Columbus, OH 43210 USA

来源：

NURSING OUTLOOK | 2018年 / 66卷 / 04期

关键词：

Omics; Research; Ethics; Nursing; PRECISION MEDICINE RESEARCH; COMMON RULE; HEALTH; SCIENCE; DETERMINANTS; PARTICIPANTS; INFORMATION; GENOMICS; CONSENT; RETURN;

D O I：

10.1016/j.outlook.2018.05.003

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Background: Pending revisions to the Common Rule include topics consistent with respect for persons, justice, and beneficence for research subjects in studies using omics technologies and are relevant to omics research. Purpose: Synthesize trends in bioethics, precision health, and omics nursing science for novice and experienced nursing scholars from which to consider bioethics questions. Methods: Review topics addressed in the National Institute of Nursing Research (NINR) strategic plan, Common Rule pending revisions, and publications regarding human subjects protection policies. Discussion: Omics research involves decisions regarding understandable informed consent, broad consent, data sharing, trust, equal benefit, equal access, societal variables, privacy, data security, and return of findings to participants. Conclusion: Principles of respect for persons, justice, and beneficence as articulated in the Belmont report and reflected in the American Nurses Association (ANA) Code of Ethics provide guidance for human subjects protection procedures to advance omics and nursing science.

引用

页码：386 / 393

页数：8

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