Health-Related Quality of Life Across Pediatric Chronic Conditions

被引:163
作者
Ingerski, Lisa M. [1 ]
Modi, Avani C. [1 ,5 ]
Hood, Korey K. [1 ,5 ]
Pai, Ahna L. [1 ,5 ]
Zeller, Meg [2 ,5 ]
Piazza-Waggoner, Carrie [2 ,5 ]
Driscoll, Kimberly A. [6 ]
Rothenberg, Marc E. [3 ,5 ]
Franciosi, James [4 ,5 ]
Hommel, Kevin A. [1 ,5 ]
机构
[1] Cincinnati Childrens Hosp, Med Ctr, Ctr Promot Treatment Adherence & Self Management, Cincinnati, OH 45229 USA
[2] Cincinnati Childrens Hosp, Med Ctr, Div Behav Med & Clin Psychol, Cincinnati, OH 45229 USA
[3] Cincinnati Childrens Hosp, Med Ctr, Div Allergy & Immunol, Cincinnati, OH 45229 USA
[4] Cincinnati Childrens Hosp, Med Ctr, Div Gastroenterol Hepatol & Nutr, Cincinnati, OH 45229 USA
[5] Univ Cincinnati, Coll Med, Dept Pediat, Cincinnati, OH USA
[6] Florida State Univ, Coll Med, Dept Med Humanities & Social Sci, Tallahassee, FL 32306 USA
关键词
FUTURE PEDIATRICIAN; PEER VICTIMIZATION; PHYSICAL-ACTIVITY; OBESE CHILDREN; SELF-REPORT; PEDSQL(TM)-4.0; ADOLESCENTS; DISEASE; OVERWEIGHT;
D O I
10.1016/j.jpeds.2009.11.008
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Objective To compare health-related quality of life (HRQOL) across 8 pediatric chronic conditions, including 5 understudied populations, and examine convergence between youth self-report and parent-proxy report. Study design Secondary data from 589 patients and their caregivers were collected across the following conditions: obesity, eosinophilic gastrointestinal disorder, inflammatory bowel disease, epilepsy, type 1 diabetes, sickle cell disease, post-renal transplantation, and cystic fibrosis. Youth and caregivers completed age-appropriate self-report and/or parent-proxy report generic HRQOL measures. Results Youth diagnosed with eosinophilic gastrointestinal disorder and obesity had lower HRQOL than other pediatric conditions by parent report. Caregivers reported lower HRQOL by proxy report than youth self-reported across most subscales. Conclusions Use of brief, easily administered, and reliable assessments of psychosocial functioning, such as HRQOL, may provide clinicians additional opportunities for intervention or services targeting improved HRQOL relative to the needs of each population. (J Pediatr 2010; 156: 639-44).
引用
收藏
页码:639 / 644
页数:6
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