Postponed Withholding: Balanced Decision-Making at the Margins of Viability

被引:29
|
作者
Syltern, Janicke [1 ,2 ]
Ursin, Lars [1 ]
Solberg, Berge [1 ]
Stoen, Ragnhild [1 ,2 ]
机构
[1] Norwegian Univ Sci & Technol, Trondheim, Norway
[2] St Olays Hosp Univ Hosp Trondheim, Trondheim, Norway
来源
AMERICAN JOURNAL OF BIOETHICS | 2022年 / 22卷 / 11期
关键词
Children and families; decision-making; end-of-life issues; pediatrics; neonatology; professional-patient relationship; BORDERLINE VIABILITY; PRETERM INFANTS; LIFE-SUPPORT; CARE; THRESHOLD; PARENTS; WITHDRAWAL; NEWBORNS; EXPERIENCES; INTERESTS;
D O I
10.1080/15265161.2021.1925777
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. Shared decision-making with parents has gained ground. However, the need to start immediate life support and the ensuing difficulty of withdrawing treatment stands in tension with the possibility of a fair decision-making process. Both the parental "instinct of saving" and "withdrawal resistance" involved can preclude shared decision-making. To help health care personnel and empower parents, we propose a novel approach labeled "postponed withholding." In the absence of a prenatal advance directive, life support is started at birth, followed by planned redirection to palliative care after one week, unless parents, after a thorough counseling process, actively ask for continued life support. Despite the emotional challenges, this approach can facilitate ethically balanced decision-making processes in the gray zone.
引用
收藏
页码:15 / 26
页数:12
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