Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project

被引：65

作者：

Stark, D. ^{[1
,2
]}

Bielack, S. ^{[3
]}

Brugieres, L. ^{[4
]}

Dirksen, U. ^{[5
,6
]}

Duarte, X. ^{[7
]}

Dunn, S. ^{[8
]}

Erdelyi, D. J. ^{[9
]}

Grew, T. ^{[10
]}

Hjorth, L. ^{[11
]}

Jazbec, J. ^{[12
]}

Kabickova, E. ^{[13
]}

Konsoulova, A. ^{[14
]}

Kowalczyk, J. R. ^{[15
]}

Lassaletta, A. ^{[6
]}

Laurence, V. ^{[16
]}

Lewis, I. ^{[17
]}

Monrabal, A. ^{[18
]}

Morgan, S. ^{[19
]}

Mountzios, G. ^{[20
]}

Olsen, P. R. ^{[21
]}

Renard, M. ^{[22
]}

Saeter, G. ^{[23
]}

van der Graaf, W. T. ^{[24
]}

Ferrari, A. ^{[25
]}

机构：

[1] Univ Leeds, Leeds Inst Canc & Pathol, Leeds Inst Oncol, Leeds, W Yorkshire, England

[2] Univ Leeds, St Jamess Univ Hosp, Leeds, W Yorkshire, England

[3] Olga Hosp, Klinikum Stuttgart, Ctr Pediat & Adolescent Med, Pediat Oncol Hematol Immunol 5, Stuttgart, Germany

[4] Inst Gustave Roussy, Dept Children & Adolescents Oncol, Villejuif, France

[5] Univ Munster, Univ Hosp Muenster, Dept Pediat Hematol & Oncol, D-48149 Munster, Germany

[6] Hosp Infantil Univ Nino Jesus, Madrid, Spain

[7] Inst Portugues Oncol Lisboa, Lisbon, Portugal

[8] Teenage Canc Trust, London, England

[9] Semmelweis Univ, H-1085 Budapest, Hungary

[10] Univ Oxford, Clin Acad Grad Sch, Oxford, England

[11] Lund Univ, Skane Univ Hosp, Dept Pediat, Clin Sci, Lund, Sweden

[12] Univ Med Ctr Ljubljana, Div Pediat, Unit Hematooncol, Ljubljana, Slovenia

[13] Charles Univ Prague, Prague, Czech Republic

[14] Med Univ Varna, Varna, Bulgaria

[15] Skubiszewski Med Univ Lublin, Childrens Univ Hosp, Lublin, Poland

[16] Inst Curie, Dept Med & Pediat Oncol, Paris, France

[17] Alder Hey Childrens NHS Fdn Trust, Liverpool, Merseyside, England

[18] Spanish Assoc Adolescents & Young Adult Canc, London, England

[19] St James Univ Hosp, Teenage Canc Trust Unit, Leeds, W Yorkshire, England

[20] Univ Athens, Sch Med, GR-11527 Athens, Greece

[21] Aarhus Univ Hosp, Dept Oncol, DK-8000 Aarhus C, Denmark

[22] Univ Hosp Leuven, Dept Pediat Hematooncol, Leuven, Belgium

[23] Oslo Univ Hosp, Inst Canc Res, Oslo, Norway

[24] Radboud Univ Nijmegen, Med Ctr, Dept Med Oncol, NL-6525 ED Nijmegen, Netherlands

[25] Fdn IRCCS Ist Nazl Tumori, Pediat Oncol Unit, Milan, Italy

来源：

EUROPEAN JOURNAL OF CANCER CARE | 2016年 / 25卷 / 03期

关键词：

teenagers; adolescents; cancer; ACUTE LYMPHOBLASTIC-LEUKEMIA; PEDIATRIC ONCOLOGY; FERTILITY PRESERVATION; ADOLESCENT ONCOLOGY; SYMPTOM INTERVAL; OF-LIFE; CARE; TUMORS; SURVIVAL; FEATURES;

D O I：

10.1111/ecc.12365

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Over 14000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.

引用

页码：419 / 427

页数：9

共 66 条

[1] Cancer in adolescents and young adults (15-29 years): A population-based study in the Netherlands 1989-2009 [J].

Aben, Katja K. ;

van Gaal, Carlijn ;

van Gils, Nienke A. ;

van der Graaf, Winette T. ;

Zielhuis, Gerhard A. .

ACTA ONCOLOGICA, 2012, 51 (07) :922-933

[2] Psychosocial issues in adolescents with cancer [J].

Abrams, Annah N. ;

Hazen, Eric P. ;

Penson, Richard T. .

CANCER TREATMENT REVIEWS, 2007, 33 (07) :622-630

[3] The management of cancer in the older adolescent [J].

Albritton, K ;

Bleyer, WA .

EUROPEAN JOURNAL OF CANCER, 2003, 39 (18) :2584-2599

[4]

Arnett JJ, 2000, AM PSYCHOL, V55, P469

[5] High expression of the ETS transcription factor ERG predicts adverse outcome in acute T-lymphoblastic leukemia in adults [J].

Baldus, Claudia D. ;

Burmeister, Thomas ;

Martus, Peter ;

Schwartz, Stefan ;

Goekbuget, Nicola ;

Bloomfield, Clara D. ;

Hoelzer, Dieter ;

Thiel, Eckhard ;

Hofmann, Wolf K. .

JOURNAL OF CLINICAL ONCOLOGY, 2006, 24 (29) :4714-4720

[6] Classification schemes for tumors diagnosed in adolescents and young adults [J].

Barr, RD ;

Holowaty, EJ ;

Birch, JM .

CANCER, 2006, 106 (07) :1425-1430

[7] Classification and incidence of cancers in adolescents and young adults in England 1979-1997 [J].

Birch, JM ;

Alston, RD ;

Kelsey, AM ;

Quinn, MJ ;

Babb, P ;

McNally, RJQ .

BRITISH JOURNAL OF CANCER, 2002, 87 (11) :1267-1274

[8] National survival trends of young adults with sarcoma - Lack of progress is associated with lack of clinical trial participation [J].

Bleyer, A ;

Montello, M ;

Budd, T ;

Saxman, S .

CANCER, 2005, 103 (09) :1891-1897

[9] The distinctive biology of cancer in adolescents and young adults [J].

Bleyer, Archie ;

Barr, Ronald ;

Hayes-Lattin, Brandon ;

Thomas, David ;

Ellis, Chad ;

Anderson, Barry .

NATURE REVIEWS CANCER, 2008, 8 (04) :288-298

[10] Adolescents and young adults with cancer - The scope of the problem and criticality of clinical trials [J].

Bleyer, Archie ;

Budd, Troy ;

Montello, Michael .

CANCER, 2006, 107 (07) :1645-1655

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