Quality of life in multiple sclerosis. Measures, relevance, problems, and perspectives

被引：11

作者：

Pöllmann W. ^{[1
,3
]}

Busch C. ^{[1
]}

Voltz R. ^{[2
]}

机构：

[1] Marianne-Strauß-Klinik, Berg

[2] Inst. F. Klinische Neuroimmunologie, Klinikum Großhadern, LMU, München

[3] Marianne-Strauß-Klinik, 82335 Berg

来源：

Der Nervenarzt | 2005年 / 76卷 / 2期

关键词：

Influencing factors; Measuring instruments; Multiple sclerosis; Quality of life; Test procedures;

D O I：

10.1007/s00115-004-1790-8

中图分类号：

学科分类号：

摘要：

Measuring quality of life (QOL) has made essential contributions for the management of patients with multiple sclerosis (MS). QOL measures may be used for helping to assess the com plex cha nges which patients with MS have to go through during the disease trajectory, and they may be used for pharmacoeconomic research. The large number of tests available includes generic ones such as Short Form SF-36 and Sickness Impact Profile, health-related ones such as MSQOL-54, FAMS, or HA-QUAMS, and patient generated measures such as the Patient Generated Index and SEIQOL-DW. Depression, cognitive impairment, and fatigue are important factors influencing QOL Since the different tests measure quite different facets of QOL, this review intends to help the reader select a tool suited to the aim and specific question. It is hoped that QOL measures may help to better understand patients, to become a more helpful medical partner, to assist patients to develop perspectives for their future, and to decide about therapies or even palliative interventions.

引用

页码：154 / 169

页数：15