What features of stigma do the public most commonly attribute to Alzheimer's disease dementia? Results of a survey of the US general public

被引:47
作者
Stites, Shana D. [1 ]
Rubright, Jonathan D. [2 ]
Karlawish, Jason [3 ,4 ]
机构
[1] Univ Penn, Dept Med Eth & Hlth Policy, Perlman Sch Med, Philadelphia, PA 19104 USA
[2] Natl Board Med Examiners, Philadelphia, PA USA
[3] Univ Penn, Dept Med Eth & Hlth Policy, Penn Memory Ctr, Philadelphia, PA 19104 USA
[4] Univ Penn, Dept Neurol, Philadelphia, PA 19104 USA
关键词
Alzheimer's disease; Stigma; General public; Policy; Program development; FAMILY MEMBERS; COMMUNITY; KNOWLEDGE; ATTITUDES; BEHAVIOR; BELIEFS; ADULTS; IMPACT; SCALE; CARE;
D O I
10.1016/j.jalz.2018.01.006
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Introduction: Understanding the prevalence of beliefs, attitudes, and expectations about Alzheimer's disease dementia in the public could inform strategies to mitigate stigma. Methods: Random sample of 317 adults from the U.S. public was analyzed to understand reactions toward a man with mild-stage Alzheimer's disease dementia. Results: In adjusted analyses, over half of respondents expected the person to be discriminated against by employers (55.3%; 95% confidence interval [CI] = 47.0-65.2) and be excluded from medical decision-making (55.3%; 95% CI = 46.9-65.4). Almost half expected his health insurance would be limited based on data in the medical record (46.6%; 95% CI = 38.0-57.2), a brain imaging result (45.6%, 95% CI = 37.0-56.3), or genetic test result (44.7%; 95% CI = 36.0-55.4). Discussion: Public education and policies are needed to address concerns about employment and insurance discrimination. Studies are needed to discover how advances in diagnosis and treatment may change Alzheimer's disease stigma. (C) 2018 the Alzheimer's Association. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:925 / 932
页数:8
相关论文
共 37 条
[1]   Expanding efforts to address Alzheimer's disease: The Healthy Brain Initiative [J].
Anderson, Lynda A. ;
Egge, Robert .
ALZHEIMERS & DEMENTIA, 2014, 10 (05) :S453-S456
[2]  
[Anonymous], STANFORD J PUBLIC HL
[3]  
[Anonymous], 2015, National Plan to Address Alzheimer's Disease: 2015 Update
[4]   Confidentiality in preclinical Alzheimer disease studies When research and medical records meet [J].
Arias, Jalayne J. ;
Karlawish, Jason .
NEUROLOGY, 2014, 82 (08) :725-729
[5]   Public Stigma: The Community's Tolerance of Alzheimer Disease [J].
Blay, Sergio Luis ;
Pisa Peluso, Erica Toledo .
AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY, 2010, 18 (02) :163-171
[6]   The Alzheimer's Disease Knowledge Scale: Development and Psychometric Properties [J].
Carpenter, Brian D. ;
Balsis, Steve ;
Otilingam, Poorni G. ;
Hanson, Priya K. ;
Gatz, Margaret .
GERONTOLOGIST, 2009, 49 (02) :236-247
[7]   The effects of exposure to scenarios about dementia on stigma and attitudes toward dementia care in a Chinese community [J].
Cheng, Sheung-Tak ;
Lam, Linda C. W. ;
Chan, Liliane C. K. ;
Law, Alexander C. B. ;
Fung, Ada W. T. ;
Chan, Wai-chi ;
Tam, Cindy W. C. ;
Chan, Wai-man .
INTERNATIONAL PSYCHOGERIATRICS, 2011, 23 (09) :1433-1441
[8]   Caregivers' attitudes toward their family members' participation in Alzheimer disease research: Implications for recruitment and retention [J].
Connell, CM ;
Shaw, BA ;
Holmes, SB ;
Foster, NL .
ALZHEIMER DISEASE & ASSOCIATED DISORDERS, 2001, 15 (03) :137-145
[9]   Being at risk of dementia: Fears and anxieties of older adults [J].
Corner, L ;
Bond, J .
JOURNAL OF AGING STUDIES, 2004, 18 (02) :143-155
[10]   STATISTICAL SIGNIFICANCE TESTS [J].
COX, DR .
BRITISH JOURNAL OF CLINICAL PHARMACOLOGY, 1982, 14 (03) :325-331