A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: A privacy-protecting remote access system for health-related research and evaluation

被引：144

作者：

Jones, Kerina H. ^{[1
]}

Ford, David V. ^{[1
]}

Jones, Chris ^{[1
]}

Dsilva, Rohan ^{[1
]}

Thompson, Simon ^{[1
]}

Brooks, Caroline J. ^{[1
]}

Heaven, Martin L. ^{[1
]}

Thayer, Daniel S. ^{[1
]}

McNerney, Cynthia L. ^{[1
]}

Lyons, Ronan A. ^{[1
]}

机构：

[1] Swansea Univ, Coll Med, ILS2, Swansea SA2 8PP, W Glam, Wales

来源：

JOURNAL OF BIOMEDICAL INFORMATICS | 2014年 / 50卷

关键词：

Data linkage; Remote access system; Privacy-protection; e-Records research; COHORT;

D O I：

10.1016/j.jbi.2014.01.003

中图分类号：

TP39 [计算机的应用];

学科分类号：

081203 ; 0835 ;

摘要：

With the current expansion of data linkage research, the challenge is to find the balance between preserving the privacy of person-level data whilst making these data accessible for use to their full potential. We describe a privacy-protecting safe haven and secure remote access system, referred to as the Secure Anonymised Information Linkage (SAIL) Gateway. The Gateway provides data users with a familiar Windows interface and their usual toolsets to access approved anonymously-linked datasets for research and evaluation. We outline the principles and operating model of the Gateway, the features provided to users within the secure environment, and how we are approaching the challenges of making data safely accessible to increasing numbers of research users. The Gateway represents a powerful analytical environment and has been designed to be scalable and adaptable to meet the needs of the rapidly growing data linkage community. (C) 2014 The Aurthors. Published by Elsevier Inc. All rights reserved. This is an open access article under the CC BY-NC-ND license.

引用

页码：196 / 204

页数：9

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