How to improve diversity in patient and public involvement

被引:5
作者
Golenya, Rebecca [1 ,2 ]
Chloros, George D. [2 ,3 ]
Panteli, Michalis [2 ,4 ,5 ]
Giannoudis, Peter, V [3 ,4 ,5 ]
Howard, Anthony [4 ,5 ,6 ,7 ]
机构
[1] St James Hosp, Dept Med, Leeds, W Yorkshire, England
[2] Univ Leeds, Sch Med, Leeds, W Yorkshire, England
[3] Acad Dept Trauma & Orthopaed, Leeds, W Yorkshire, England
[4] Univ Leeds, Leeds Inst Rheumat & Musculoskeletal Med, Leeds, W Yorkshire, England
[5] Univ Leeds, Leeds Orthopaed Trauma Sci, Leeds, W Yorkshire, England
[6] Leeds Gen Infirm, Dept Trauma & Orthopaed, Leeds, W Yorkshire, England
[7] Univ Oxford, Nuffield Dept Orthopaed Rheumatol & Musculoskelet, Oxford, England
关键词
Diversity; Patient and public involvement; HEALTH-CARE; MINORITY;
D O I
10.12968/hmed.2021.0176
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Patient and public involvement involves ascertaining the opinions of and collaborating with patients and members of the public to holistically improve the quality of research. Patient and public involvement provides patients with a platform to use and share their lived experiences. This allows healthcare professionals to gain a deeper appreciation of the patient's perspective, which enables future research to be more patient centred and tailored to patients' requirements. Patient and public involvement aims to broadly encapsulate the opinions of the public, so ensuring diversity is recommended. This article provides a practical framework to increase diversity and engage hard-to-reach demographics in patient and public involvement. It highlights some common barriers to participation and methods for overcoming this, describes sampling frameworks and provides examples of how these have been adopted in practice.
引用
收藏
页数:8
相关论文
共 50 条
[21]   Patient and public involvement in clinical research: An introduction [J].
Schilling, Imke ;
Herbon, Carolin ;
Jilani, Hannah ;
Rathjen, Kim Isabel ;
Gerhardus, Ansgar .
ZEITSCHRIFT FUR EVIDENZ FORTBILDUNG UND QUALITAET IM GESUNDHEITSWESEN, 2020, 155 :56-63
[22]   Still Puzzling: Patient and Public Involvement in Commissioning [J].
Coleman, Anna ;
Checkland, Kath ;
Harrison, Stephen .
JOURNAL OF INTEGRATED CARE, 2009, 17 (06) :23-U40
[23]   Patient and public involvement in disability and rehabilitation research [J].
Kroll, Thilo ;
Escorpizo, Reuben .
FRONTIERS IN REHABILITATION SCIENCES, 2023, 4
[24]   Patient and public involvement in infection clinical research [J].
Grier, S. ;
Gibson, A. ;
Micciche, A. ;
Berry, E. ;
MacGowan, A. .
CLINICAL MICROBIOLOGY AND INFECTION, 2018, 24 (11) :1121-1122
[25]   Patient and public involvement: What next for the NHS? [J].
Hogg, Christine N. L. .
HEALTH EXPECTATIONS, 2007, 10 (02) :129-138
[26]   Patient and public involvement and the implementation of research into practice [J].
Gillard, Steve ;
Foster, Rhiannon ;
Papoulias, Constantina .
JOURNAL OF MENTAL HEALTH TRAINING EDUCATION AND PRACTICE, 2016, 11 (04) :256-267
[27]   Patient and Public Involvement in Healthcare Quality Improvement: How organizations can help patients and professionals to collaborate [J].
Renedo, Alicia ;
Marston, Cicely Alice ;
Spyridonidis, Dimitrios ;
Barlow, James .
PUBLIC MANAGEMENT REVIEW, 2015, 17 (01) :17-34
[28]   Gaps between needs of patient and public involvement and interests of researchers on pancreatic cancer [J].
Resell, Mathilde ;
Stranden, Morten ;
Qvigstad, Gunnar ;
Chen, Duan ;
Zhao, Chun-Mei .
PATIENT EDUCATION AND COUNSELING, 2024, 120
[29]   Institutional reforms to strengthen patient and public involvement in the Czech Republic since 2014 [J].
Dobiasova, Karolina ;
Kotherova, Zuzana ;
Numerato, Dino .
HEALTH POLICY, 2021, 125 (05) :582-586
[30]   Patient and public involvement in mobile health-based research for hay fever: a qualitative study of patient and public involvement implementation process [J].
Fujio K. ;
Inomata T. ;
Fujisawa K. ;
Sung J. ;
Nakamura M. ;
Iwagami M. ;
Muto K. ;
Ebihara N. ;
Nakamura M. ;
Okano M. ;
Akasaki Y. ;
Okumura Y. ;
Ide T. ;
Nojiri S. ;
Nagao M. ;
Fujimoto K. ;
Hirosawa K. ;
Murakami A. .
Research Involvement and Engagement, 8 (1)