Relatives of Children Bearing Sickle Cell Anemia: Knowledge and Practice

被引:0
作者
Pacheco, Danielly Pereira [1 ]
da Costa, Brisa Cesciria [1 ]
Laignier, Mariana Rabello [1 ]
Bastos Depianti, Jessica Renata [1 ,2 ]
de Souza, Tania Vignuda [1 ,3 ]
Nunes Nascimento, Luciana de Cassia [1 ]
机构
[1] Univ Fed Espirito Santo, Vitoria, ES, Brazil
[2] Univ Fed Sao Paulo UNIFESP, Sao Paulo, SP, Brazil
[3] Univ Fed Rio de Janeiro, Rio de Janeiro, Brazil
来源
REVISTA DE PESQUISA-CUIDADO E FUNDAMENTAL ONLINE | 2019年 / 11卷 / 05期
关键词
Sickle Cell Anemia; Child; Family; Knowledge; Health Care Education;
D O I
10.9789/2175-5361.2019.v11i5.1213-1218
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objective: l his work aims to describe the type of care provided by relatives for children with sickle cell anemia according to Colliere. Methods: It is descriptive study with a qualitative approach, which was carried out with relatives of children bearing sickle cell anemia in a general hospital in Vitoria city, Espirito Santo State, Brazil, by using semi-structured interviews. Data were interpreted in light of the Colliere's Theoretical Reference and submitted to Thematic Analysis. Results: Families had to deal with the health care professionals' lack of skill needed to convey the diagnostic. Also, there was a predominance of the maintenance care related to the time of diagnosis, playing, daily medication, body hydration, diet, elimination, and clothing. Nonetheless, repair care was restricted to emergency situations. Conclusion: It is necessary to train the professionals who care for children with sickle cell anemia to better meet their needs and those of their families.
引用
收藏
页码:1213 / 1218
页数:6
相关论文
共 16 条
  • [1] An update on sickle cell nephropathy
    Alhwiesh, Abdullah
    [J]. SAUDI JOURNAL OF KIDNEY DISEASES AND TRANSPLANTATION, 2014, 25 (02) : 249 - 265
  • [2] Ataide CA, 2016, INTERFACES CIENTIFIC, V4, P19
  • [3] Sampling in qualitative research: a proposal for procedures to detect theoretical saturation
    Barcellos Fontanella, Bruno Jose
    Luchesi, Bruna Moretti
    Borges Saidel, Maria Giovana
    Ricas, Janete
    Turato, Egberto Ribeiro
    Melo, Debora Gusmao
    [J]. CADERNOS DE SAUDE PUBLICA, 2011, 27 (02): : 389 - 394
  • [4] Colliere M.-F., 2001, Cuidar... A primeira arte da vida
  • [5] Dyson S., 2014, DOENCA FALCIFORME ES
  • [6] Gesteira ECR, 2016, ONLINE BRAZILIAN J N, V15, P276, DOI DOI 10.17665/1676-4285.20165289
  • [7] Gomes ILV, 2016, SAUDE COLETIVA SUAS
  • [8] Coping and Coping Assistance Among Children With Sickle Cell Disease and Their Parents
    Hildenbrand, Aimee K.
    Barakat, Lamia P.
    Alderfer, Melissa A.
    Marsac, Meghan L.
    [J]. JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2015, 37 (01) : 25 - 34
  • [9] Systematic Review of Transition From Adolescent to Adult Care in Patients With Sickle Cell Disease
    Jordan, Lanetta
    Swerdlow, Paul
    Coates, Thomas D.
    [J]. JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2013, 35 (03) : 165 - 169
  • [10] Lima LC, 2015, REV HUPE, V14, P58