Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health

被引：8

作者：

Goldberg, Elizabeth M. ^{[1
,2
,3
]}

Rosen, Rochelle K. ^{[3
,4
,5
]}

Dizon, Don S. ^{[3
,6
,7
]}

Langdon, Kirsten J. ^{[3
,5
,8
]}

Davoodi, Natalie M. ^{[9
]}

Wray, Tyler B. ^{[3
,10
]}

Nugent, Nicole R. ^{[3
,5
]}

Dunsiger, Shira I. ^{[3
,4
]}

Ranney, Megan L. ^{[1
,3
,4
]}

机构：

[1] Brown Univ, Dept Emergency Med, Warren Alpert Med Sch, Providence, RI USA

[2] Brown Univ, Dept Hlth Serv, Policy Practice, Sch Publ Hlth, Providence, RI USA

[3] Brown Lifespan Ctr Digital Hlth, Providence, RI USA

[4] Brown Univ, Sch Publ Hlth, Dept Behav & Social Sci, Providence, RI USA

[5] Brown Univ, Dept Psychiat & Human Behav, Warren Alpert Med Sch, Providence, RI USA

[6] Brown Univ, Dept Med Oncol, Warren Alpert Med Sch, Providence, RI USA

[7] Lifespan Canc Inst, Rhode Isl Hosp, Providence, RI USA

[8] Rhode Isl Hosp, Dept Psychiat, Providence, RI USA

[9] Dept Emergency Med, Providence, RI USA

[10] Brown Univ, Sch Publ Hlth, Dept Behav & Social Sci, Ctr Alcohol & Addict Studies, Providence, RI USA

来源：

JOURNAL OF MEDICAL INTERNET RESEARCH | 2022年 / 24卷 / 06期

关键词：

social media; Twitter; Facebook; clinical research; privacy; institutional review board; regulations; regulation; guideline; big data; RECRUITMENT; ETHICS; ISSUES; COST;

D O I：

10.2196/35804

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has been held back. The use of these technologies in research is dependent on the investigators' awareness of their potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a helpful framework to expand social media use in clinical research.

引用

页数：11

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