Measuring PROMIS® Well-Being in Early Childhood

被引:19
作者
Blackwell, Courtney K. [1 ,2 ]
Kallen, Michael A. [1 ,2 ]
Lai, Jin-Shei [1 ,2 ]
Bevans, Katherine B. [3 ]
Wakschlag, Lauren S. [1 ,2 ]
Cella, David [1 ,2 ]
机构
[1] Northwestern Univ, Dept Med Social Sci, Feinberg Sch Med, 625 N Michigan Ave,Suite 21-059, Chicago, IL 60611 USA
[2] Inst Innovat Dev Sci DevSci, Chicago, IL USA
[3] Janssen Pharmaceut Co, Global Commercial Strategy Org, Johnson & Johnson, Titusville, NJ USA
基金
美国国家卫生研究院;
关键词
health promotion and prevention; infancy and early childhood; measure validation; preschool children; psychosocial functioning; quality of life; SELF-CONTROL; HEALTH; LIFE; SATISFACTION; RESILIENCE; DISORDERS; FRAMEWORK; CHILDREN;
D O I
10.1093/jpepsy/jsac030
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Objective Expand the current Patient-Reported Outcome Measurement Information System (PROMIS (R)) well-being measures to early childhood (1-5 years) using best practices from PROMIS and developmental science. Methods Qualitative methods included expert input, literature and measure review, and parent interviews to confirm measure frameworks, item understandability, and developmental appropriateness. Quantitative methods included two waves of field testing and item response theory (IRT)-based psychometric evaluation of reliability and validity, as well as IRT centering and item calibration. Correlational analyses with other PROMIS Early Childhood (EC) Parent Report measures and known-group differences analyses by health status were conducted to evaluate construct validity. All measures were normed to the general U.S. population. Results Qualitative results suggested three primary early childhood well-being domains: Positive Affect, Engagement, and Self-Regulation. Quantitative results revealed a unidimensional factor structure for Positive Affect and multidimensional factor structures for Engagement and Self-Regulation, both of which had two factors accounting for >10% of modeled variance reflecting unique unidimensional domains. This resulted in five final PROMIS EC well-being measures: Positive Affect, Engagement-Curiosity, Engagement-Persistence, Self-Regulation-Flexibility, and SelfRegulation-Frustration Tolerance. Correlations and known-groups differences analyses showed robust construct validity across a range of chronic health conditions. Conclusions The new PROMIS EC Parent Report well-being measures offer clinicians and researchers a brief, efficient, and precise way to evaluate young children's well-being. All five measures include only positively valanced item content, which pushes the field to evaluate the presence of children's positive assets rather than the absence of problems.
引用
收藏
页码:559 / 572
页数:14
相关论文
共 57 条
[1]  
[Anonymous], 2004, Childrens Health, the Nations Wealth: Assessing and Improving Child Health
[2]  
Baker L., 2017, European Journal of Applied Positive Psychology, V1, P2397
[3]   Toward Measurement for a Whole Child Health Policy: Validity and National and State Prevalence of the Integrated Child Risk Index [J].
Bethell, Christina ;
Blackwell, Courtney K. ;
Gombojav, Narangerel ;
Davis, Martha B. ;
Bruner, Charles ;
Garner, Andrew S. .
ACADEMIC PEDIATRICS, 2022, 22 (06) :952-964
[4]   Social and Relational Health Risks and Common Mental Health Problems Among US Children The Mitigating Role of Family Resilience and Connection to Promote Positive Socioemotional and School-Related Outcomes [J].
Bethell, Christina D. ;
Garner, Andrew S. ;
Gombojav, Narangerel ;
Blackwell, Courtney ;
Heller, Laurence ;
Mendelson, Tamar .
CHILD AND ADOLESCENT PSYCHIATRIC CLINICS OF NORTH AMERICA, 2022, 31 (01) :45-70
[5]   General Health and Life Satisfaction in Children With Chronic Illness [J].
Blackwell, Courtney K. ;
Elliott, Amy J. ;
Ganiban, Jody ;
Herbstman, Julie ;
Hunt, Kelly ;
Forrest, Christopher B. ;
Camargo, Carlos A., Jr. ;
Perera, F. P. ;
Miller, R. ;
Bristow, H. ;
Vena, J. E. ;
Wapner, R. ;
Blaisdell, C. ;
Gershon, R. ;
Cella, D. ;
Leve, L. D. .
PEDIATRICS, 2019, 143 (06)
[6]   Measurement framework for the Environmental influences on Child Health Outcomes research program [J].
Blackwell, Courtney K. ;
Wakschlag, Lauren S. ;
Gershon, Richard C. ;
Cella, David .
CURRENT OPINION IN PEDIATRICS, 2018, 30 (02) :276-284
[7]  
Caspi A, 1996, ARCH GEN PSYCHIAT, V53, P1033
[8]   The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years [J].
Cella, David ;
Yount, Susan ;
Rothrock, Nan ;
Gershon, Richard ;
Cook, Karon ;
Reeve, Bryce ;
Ader, Deborah ;
Fries, James F. ;
Bruce, Bonnie ;
Rose, Mattias .
MEDICAL CARE, 2007, 45 (05) :S3-S11
[9]   The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008 [J].
Cella, David ;
Riley, William ;
Stone, Arthur ;
Rothrock, Nan ;
Reeve, Bryce ;
Yount, Susan ;
Amtmann, Dagmar ;
Bode, Rita ;
Buysse, Daniel ;
Choi, Seung ;
Cook, Karon ;
DeVellis, Robert ;
DeWalt, Darren ;
Fries, James F. ;
Gershon, Richard ;
Hahn, Elizabeth A. ;
Lai, Jin-Shei ;
Pilkonis, Paul ;
Revicki, Dennis ;
Rose, Matthias ;
Weinfurt, Kevin ;
Hays, Ron .
JOURNAL OF CLINICAL EPIDEMIOLOGY, 2010, 63 (11) :1179-1194
[10]  
Centers for Disease Control and Prevention (CDC), 2018, Well-being concepts, P1