APPLICATION OF THE ICF CHECKLIST IN THE CHINESE SYSTEMIC LUPUS ERYTHEMATOSUS PATIENTS: A CROSS-SECTIONAL STUDY

Systemic lupus erythematosus (SLE) has wide damages on people's function. Thorough explore of problems will benefit SLE patient's needs determination, resources allocation, rehabilitation and outcomes assessment. Therefore, there was a need for an instrument that can conduct a comprehensive investigation of SLE people's experienced problems. To identify SLE patients' function, disability and health problems and to provide references for the future development of SLE core sets. A cross-sectional study was conducted in the rheumatology outpatient in one general hospital in China. 100 SLE patients' function, disability and health problems were collected using expanded ICF checklist. Descriptive analysis was performed to summarize the data. Of the 150 categories, 55 categories were relevant to at least 20% of the patients, 28 from body functions and structures component, 14 from activities and participation component and 13 from environmental factors component. The mostly referred problems were fatiguability (96%) in body functions, joints (76%) in body structures. The most restricted activity was remunerative employment (71%), and patients' mostly important facilitator was immediate family (47%), mostly referred barrier was light (96%). In conclusion, a large variety of problems were identified, reflecting the complexity of the lived experiences of SLE patients, and intervention should be taken based on those relevant categories. And this study also can serve as a reference for future development of SLE core set.