Understanding the Therapeutic Coaching Needs of Mothers of Children with Cerebral Palsy

被引:2
作者
Alabdulqader, Ebtisam [1 ]
Stockwell, Katy [2 ]
Montague, Kyle [3 ]
Jackson, Dan [2 ]
Monk, Andrew [4 ]
Pennington, Lindsay [2 ]
Mcnaney, Roisin [5 ]
Lindsay, Stephen [6 ]
Wu, Ling [7 ]
Olivier, Patrick [7 ]
机构
[1] King Saud Univ, Riyadh, Saudi Arabia
[2] Newcastle Univ, Newcastle Upon Tyne, England
[3] Northumbria Univ, Newcastle Upon Tyne, Tyne & Wear, England
[4] Univ York, York, England
[5] Monash Univ, Melbourne, Australia
[6] Univ Glasgow, Glasgow, Scotland
[7] Monash Univ, Melbourne, Vic, Australia
来源
PROCEEDINGS OF THE 2022 ACM DESIGNING INTERACTIVE SYSTEMS CONFERENCE, DIS 2022 | 2022年
关键词
Cerebral Palsy; Parents; Caregiver; Children; Coaching; Therapy; INDUCED MOVEMENT THERAPY; PRESCHOOL-CHILDREN; SELF-CARE; TECHNOLOGY; HOME;
D O I
10.1145/3532106.3533576
中图分类号
TP39 [计算机的应用];
学科分类号
081203 ; 0835 ;
摘要
Mothers of preschool children with cerebral palsy are often responsible for delivering multiple home therapy programs. Technology could be a way to bridge some of the challenges of home therapy delivery, such as lack of regular contact with professionals and the need for support continuity. We interviewed seven mothers and four speech therapists to explore their challenges, and the types of support they currently receive (or give). Key issues included limitations of existing communication channels between mothers and professionals, the mothers' social support needs, and the level of commitment required to self-deliver home therapy. Based on fndings indicating video sharing as an existing practice among mothers, we conducted three workshops to further investigate how a video-based platform could support home therapy delivery. We conclude with a number of design considerations for such technologies, to improve communication and collaboration between professional therapists, mothers and members of their wider social network.
引用
收藏
页码:1788 / 1801
页数:14
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