Are burns a chronic condition? Examining patient reported outcomes up to 20 years after burn injury-A Burn Model System National Database investigation

被引:36
作者
Abouzeid, Cailin A. [1 ]
Wolfe, Audrey E. [1 ]
Ni, Pengsheng [9 ]
Carrougher, Gretchen J. [2 ]
Gibran, Nicole S. [2 ]
Hammond, Flora M. [7 ,8 ]
Holavanahalli, Radha [5 ]
McMullen, Kara A. [3 ]
Roaten, Kimberly [6 ]
Suman, Oscar [10 ,11 ]
Stewart, Barclay T. [2 ,4 ]
Wolf, Steven [10 ,11 ]
Zafonte, Ross [1 ,12 ,15 ,16 ]
Kazis, Lewis E. [1 ,9 ,15 ,16 ]
Ryan, Colleen M. [13 ,14 ,15 ]
Schneider, Jeffrey C. [1 ,9 ,15 ,16 ]
机构
[1] Spaulding Rehabil Hosp, Dept Phys Med & Rehabil, Boston, MA USA
[2] Univ Washington, Dept Surg, Seattle, WA 98195 USA
[3] Univ Washington, Dept Rehabil Med, Seattle, WA 98195 USA
[4] Univ Washington, Harborview Injury Prevent & Res Ctr, Seattle, WA 98195 USA
[5] Univ Texas South Western Med Ctr, Dept Phys Med & Rehabil, Dallas, TX USA
[6] Univ Texas South Western Med Ctr, Dept Psychiat, Dallas, TX USA
[7] Indiana Univ Sch Med, Dept Phys Med & Rehabil, Indianapolis, IN 46202 USA
[8] Rehabilitat Hosp Indiana, Indianapolis, IN USA
[9] Boston Univ, Sch Publ Hlth, Dept Hlth Law Policy & Management, Boston, MA 02215 USA
[10] Univ Texas Med Branch, Dept Surg, Galveston, TX 77555 USA
[11] Shriners Hosp Children, Dept Surg, Galveston, TX 77550 USA
[12] Massachusetts Gen Hosp, Dept Phys Med & Rehabil, Boston, MA 02114 USA
[13] Massachusetts Gen Hosp, Dept Surg, Boston, MA 02114 USA
[14] Shriners Hosp Children, Dept Surg, Boston, MA USA
[15] Harvard Med Sch, Boston, MA 02115 USA
[16] Spaulding Res Inst, Dept Phys Med & Rehabilitat, Boston, MA USA
关键词
Burn injuries; chronic conditions; long-term outcomes; patient reported outcomes; QUALITY-OF-LIFE; HEALTH SURVEY; SATISFACTION; SURVIVORS; PRURITUS; IMPACT; VALIDATION; RECOVERY; ADULTS;
D O I
10.1097/TA.0000000000003547
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
BACKGROUND: People living with burn injury often face long-term physical and psychological sequelae associated with their injuries. Few studies have examined the impacts of burn injuries on long-term health and function, life satisfaction, and community integration beyond 5 years postinjury. The purpose of this study was to examine these outcomes up to 20 years after bum injury. METHODS: Data from the Burn Model System National Longitudinal Database (1993-2020) were analyzed. Patient-reported outcome measures were collected at discharge (preinjury status recall) and 5 years, 10 years, 15 years, and 20 years after injury. Outcomes examined were the SF-12/VR-12 Physical Component Summary and Mental Component Summary, Satisfaction with Life Scale, and Community Integration Questionnaire. Trajectories were developed using linear mixed models with repeated measures of outcome scores over time, controlling for demographic and clinical variables. RESULTS: The study population included 421 adult bum survivors with a mean age of 42.4 years. Lower Physical Component Summary scores (worse health) were associated with longer length of hospital stay, older age at injury and greater time since injury. Similarly, lower Mental Component Summary scores were associated with longer length of hospital stay, female sex, and greater time since injury. Satisfaction with Life Scale scores decrease negatively over time. Lower Community Integration Questionnaire scores were associated with burn size and Hispanic/Latino ethnicity. CONCLUSION: Bum survivors' physical and mental health and satisfaction with life worsened over time up to 20 years after injury. Results strongly suggest that future studies should focus on long-term follow-up where clinical interventions may be necessary. Copyright (C) 2022 Wolters Kluwer Health, Inc. All rights reserved.
引用
收藏
页码:1066 / 1074
页数:9
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