European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe

被引：108

作者：

Nacul, Luis ^{[1
,2
]}

Authier, Francois Jerome ^{[3
]}

Scheibenbogen, Carmen ^{[4
]}

Lorusso, Lorenzo ^{[5
]}

Helland, Ingrid Bergliot ^{[6
]}

Martin, Jose Alegre ^{[7
]}

Sirbu, Carmen Adella ^{[8
]}

Mengshoel, Anne Marit ^{[9
]}

Polo, Olli ^{[10
]}

Behrends, Uta ^{[11
]}

Nielsen, Henrik ^{[12
]}

Grabowski, Patricia ^{[13
]}

Sekulic, Slobodan ^{[14
]}

Sepulveda, Nuno ^{[15
]}

Estevez-Lopez, Fernando ^{[16
]}

Zalewski, Pawel ^{[17
]}

Pheby, Derek F. H. ^{[18
]}

Castro-Marrero, Jesus ^{[19
]}

Sakkas, Giorgos K. ^{[20
]}

Capelli, Enrica ^{[21
]}

Brundsdlund, Ivan ^{[22
]}

Cullinan, John ^{[23
]}

Krumina, Angelika ^{[24
]}

Bergquist, Jonas ^{[25
,26
]}

Murovska, Modra ^{[27
]}

Vermuelen, Ruud C. W. ^{[28
]}

Lacerda, Eliana M. ^{[29
]}

机构：

[1] London Sch Hyg & Trop Med, Fac Infect & Trop Dis, London WC1E 7HT, England

[2] BC Womens Hosp, Vancouver, BC V6H 3N1, Canada

[3] Fac Med Creteil Paris Est, F-94010 Creteil, France

[4] Charite Univ Med Berlin, Inst Med Immunol, D-10117 Berlin, Germany

[5] Neurol & Stroke Unit Neurosci Dept ASST Lecco, I-23900 Merate, Italy

[6] Rikshosp OUS, Natl Advisory Unit CFS ME, Oslo Univ Hosp, N-0372 Oslo, Norway

[7] Univ Autonoma Barcelona, Chron Fatigue Unit, Hosp Univ Vall dHebron Univ Hosp VHIR, E-08035 Barcelona, Spain

[8] Titu Maiorescu Univ, Cent Mil Emergency Univ Hosp, Bucharest 040441, Romania

[9] Univ Oslo, Inst Hlth & Soc, Fac Med, Box 1089 Blindern, N-0317 Oslo, Norway

[10] Bragee ME CFS Ctr, S-11526 Stockholm, Sweden

[11] Tech Univ Munich, Sch Med, Dept Pediat, D-80333 Munich, Germany

[12] Privat Hosp Danmark, DK-2920 Charlottenlund, Denmark

[13] Charite, Inst Med Immunol, Dept Hematol Oncol & Tumor Immunol, D-10117 Berlin, Germany

[14] Univ Novi Sad, Med Fac Novi Sad, Novi Sad 21000, Serbia

[15] Univ Lisbon, Ctr Stat & Its Applicat, P-1749016 Lisbon, Portugal

[16] Erasmus MC Univ Med Ctr, NL-3015 Rotterdam, Netherlands

[17] Nicolaus Copernicus Univ Torun, Dept Hyg Epidemiol Ergon & Postgrad Educ, Coll Med, PL-85067 Bydgoszcz, Poland

[18] Buckinghamshire New Univ, Soc & Hlth, High Wycombe HP11 2JZ, Bucks, England

[19] Vall dHebron Hosp Res Inst VHIR, Div Rheumatol, ME CFS Res Unit Lab 009 Box 02, Val dHebron Hosp Res Unit VIHR, Passeig Val dHebron 119-129, E-08035 Barcelona, Spain

[20] Univ Thessaly, Dept PE & Sports Sci, Trikala 42100, Greece

[21] Univ Pavia, Dept Earth & Environm Sci, I-27100 Pavia, Italy

[22] Univ Hosp Southern Denmark, Dept Reg Hlth Res, DK-5000 Odense, Denmark

[23] Natl Univ Ireland Galway, Sch Business & Econ, Univ Rd, Galway H91 TK33, Ireland

[24] Riga Stradins Univ, Dept Infectiol & Dermatol, LV-1067 Riga, Latvia

[25] Uppsala Univ, Dept Chem Biomed Ctr, Analyt Chem & Neuro Chem, S-75123 Uppsala, Sweden

[26] Uppsala Univ, Myalg Encephalomyelitis Chron Fatigue Syndrome ME, S-75123 Uppsala, Sweden

[27] Riga Stradins Univ, Inst Microbiol & Virol, LV-1067 Riga, Latvia

[28] CFS ME Med Ctr, NL-1078 Amsterdam, Netherlands

[29] London Sch Hyg & Trop Med, Dept Clin Res, Fac Infect & Trop Dis, London WC1E 7HT, England

来源：

MEDICINA-LITHUANIA | 2021年 / 57卷 / 05期

关键词：

Myalgic Encephalomyelitis; Chronic Fatigue Syndrome; diagnosis; health services; care; GENE-EXPRESSION SUBTYPES; YOUNG-PEOPLE; MORTALITY; FIBROMYALGIA; INDIVIDUALS; PREVALENCE; SEVERITY; ENGLAND; PATIENT; ANXIETY;

D O I：

10.3390/medicina57050510

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)-COST action 15111-from 2016 to 2020. The main goal of the Cost Action was to assess the existing knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report our findings and make recommendations for clinical diagnosis, health services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS.

引用

页数：25

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