Crowdsourced analysis of factors and misconceptions associated with parental willingness to donate their child's organs

被引:3
作者
Jones, Amy H. [1 ,2 ]
Jacobs, Marni B. [3 ]
October, Tessie W. [1 ,2 ]
机构
[1] Childrens Natl Hlth Syst, Dept Crit Care, Washington, DC 20010 USA
[2] George Washington Univ, Sch Med & Hlth Sci, Dept Pediat, Washington, DC 20052 USA
[3] Childrens Natl Hosp, Childrens Res Inst, Childrens Natl Hlth Syst, Washington, DC USA
关键词
brain death; surveys and questionnaires; tissue and organ procurement; RACIAL DISPARITIES; CLINICAL-RESEARCH; CONSENT RATES; BRAIN-DEATH; MOTIVATIONS; EDUCATION; IMPACT;
D O I
10.1111/petr.13606
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
We evaluated factors associated with a parental willingness to donate their child's organs. A twenty-one-question survey was administered to US parents with at least one child to measure organ donation acceptability and brain death beliefs using an online crowdsourcing medium, Amazon's Mechanical Turk Prime. We collected 425 surveys; 76% were willing to donate their own and 65% willing to donate their child's organs. Parents who agreed brain death was synonymous with death (47%) were 2.37 times more willing to donate. Compared with White respondents, Black (OR 5.27, CI 2.81, 9.88) and Hispanic (OR 2.24, CI 1.06-4.75) participants were more likely to believe doctors "steal organs from patients" and "declare someone dead based on their skin color" (OR 4.97, CI 2.65-9.32; OR 2.19, CI 1.01-4.72, respectively). Lower income participants were also more likely to believe doctors "steal organs from patients," OR 0.81 (95% CI 0.68-0.96 for increasing income) and "declare someone dead based on how much money they have," OR 0.80 (95% CI 0.67-0.96 for increasing income). Confusion surrounding brain death and skepticism (particularly among racial and ethnic minorities and lower socioeconomic groups) toward doctors' motivations for donation contribute to lack of parental willingness to donate.
引用
收藏
页数:9
相关论文
共 42 条
[1]  
[Anonymous], 2018, 2018 ANN REPORT US O
[2]   The motivations, enablers and barriers for voluntary participation in an online crowdsourcing platform [J].
Baruch, Avinoam ;
May, Andrew ;
Yu, Dapeng .
COMPUTERS IN HUMAN BEHAVIOR, 2016, 64 :923-931
[3]   Attitudes, beliefs and behaviors surrounding organ donation among Hispanic women [J].
Breitkopf, Carmen Radecki .
CURRENT OPINION IN ORGAN TRANSPLANTATION, 2009, 14 (02) :191-195
[4]   Minority Organ Donation: The Power of an Educated Community [J].
Callender, Clive O. ;
Miles, Patrice V. .
JOURNAL OF THE AMERICAN COLLEGE OF SURGEONS, 2010, 210 (05) :708-715
[5]   Conducting Clinical Research Using Crowdsourced Convenience Samples [J].
Chandler, Jesse ;
Shapiro, Danielle .
ANNUAL REVIEW OF CLINICAL PSYCHOLOGY, VOL 12, 2016, 12 :53-81
[6]   Racial Disparities in Breast Cancer Diagnosis and Treatment by Hormone Receptor and HER2 Status [J].
Chen, Lu ;
Li, Christopher I. .
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION, 2015, 24 (11) :1666-1672
[7]   Racial disparities in access to renal transplantation - Clinically appropriate or due to underuse or overuse? [J].
Epstein, AM ;
Ayanian, JZ ;
Keogh, JH ;
Noonan, SJ ;
Armistead, N ;
Cleary, PD ;
Weissman, JS ;
David-Kasdan, JA ;
Carlson, D ;
Fuller, J ;
Marsh, D ;
Conti, RM .
NEW ENGLAND JOURNAL OF MEDICINE, 2000, 343 (21) :1537-U8
[8]  
Face Validity, ENCY RES DESIGN
[9]  
Fox S, 2013, HLTH ONLINE 2013 NAT
[10]   What Are Parents Willing to Discuss with Their Pediatrician About Firearm Safety? A Parental Survey [J].
Garbutt, Jane M. ;
Bobenhouse, Neil ;
Dodd, Sherry ;
Sterkel, Randall ;
Strunk, Robert C. .
JOURNAL OF PEDIATRICS, 2016, 179 :166-171