The Co-Creation of a Patient Information Leaflet for Patients With the Rare Eye Infection Acanthamoeba keratitis

被引：0

作者：

Ekkeshis, Irenie ^{[1
,2
]}

Mason, Melanie ^{[2
]}

Watson, Martin ^{[2
]}

Rowan, Bryony ^{[2
]}

Carnt, Nicole ^{[2
,3
,4
,5
]}

机构：

[1] New Citizenship Project, London, England

[2] Moorfields Eye Hosp NHS Fdn Trust, London, England

[3] UNSW, Sydney, NSW, Australia

[4] Univ Sydney, Sydney, NSW, Australia

[5] UCL, London, England

来源：

JOURNAL OF PATIENT EXPERIENCE | 2022年 / 9卷

关键词：

vision; eye; infection; co-creation; patient engagement; patient perspectives/narratives; quality of life; survey; APPEARANCE; DIAGNOSIS; IMPACT;

D O I：

10.1177/23743735221103031

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Acanthamoeba keratitis (AK) is a rare but severe eye disease. A research engagement event, "The Cornea Day," in London, UK in 2013, identified the lack of credible information about AK and a need for practical day to day management strategies. Experiences of 15 AK patients attending The Cornea Day were distilled into a survey that was administered to a wider group of 76 patients, carers, researchers, and clinicians. A Patient Information Leaflet was cocreated and then represented to additional patients for final modification. The AK Patient Leaflet (revised 2019) is available in several languages and used globally.

引用

页数：4

共 16 条

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