Culturally Acceptable Advance Care Planning and Advance Directives for Persons Experiencing Homelessness

被引:7
作者
Stone, Whitney [1 ,2 ]
Mixer, Sandra J. [2 ]
Mendola, Annette [3 ,4 ]
机构
[1] East Tennessee Childrens Hosp, Intens Care Unit, Knoxville, TN USA
[2] Univ Tennessee, Coll Nursing, Knoxville, TN USA
[3] Univ Tennessee, Grad Sch Med, Div Clin Eth, Knoxville, TN USA
[4] Univ Tennessee, Med Ctr, Knoxville, TN USA
关键词
advance care planning; advance directive; culturally congruent care; end-of-life; homeless persons; OF-LIFE CARE; NURSING-STUDENTS; END; PEOPLE; INTERVENTION; COMPLETION; ADULTS;
D O I
10.1097/NJH.0000000000000530
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Although the process of dying is a universal human experience, it often magnifies individuals' unique cultural differences. Persons experiencing homelessness (PEHs) have unique barriers, challenges, and wishes for end-of-life care. There is insufficient evidence about how to provide culturally congruent advance care planning (ACP) through advance directive (AD) completion for PEHs. This study addressed this knowledge gap, and its findings serve as the basis for developing additional strategies to promote a satisfying ACP experience for this population when they complete an AD. The purpose of this study was to discover if an AD form recreated for PEHs would positively affect their completion of the AD as well as their overall experience with ACP. Guided by the culture care theory and qualitative ethnonursing methodology, 38 individuals (30 PEHs and 8 student nurses) were interviewed. Data were analyzed using the 4 phases of ethnonursing analysis. The 3 themes abstracted were (1) "it needs to be done," (2) the presence or absence of trusted family support, and (3) ACP for PEHs is facilitated by an AD workshop. Nursing interventions based on study findings can be used to help promote a dignified, meaningful ACP experience for vulnerable populations.
引用
收藏
页码:350 / 357
页数:8
相关论文
共 25 条
[1]  
[Anonymous], 2015, DYING AM IMPR QUAL H
[2]  
Department of Housing and Urban Development, 2018, PROQUEST STAT ABSTR
[3]  
Garner L, 2015, ONLINE J RURAL NURS, V15
[4]   End-of-Life Treatment Preferences: A Key to Reducing Ethnic/Racial Disparities in Advance Care Planning? [J].
Garrido, Melissa M. ;
Harrington, Shannon T. ;
Prigerson, Holly G. .
CANCER, 2014, 120 (24) :3981-3986
[5]   Palliative Nursing Summit: Nurses Leading Change and Transforming Care: The Nurse's Role in Communication and Advance Care Planning [J].
Head, Barbara Anderson ;
Song, Mi-Kyung ;
Wiencek, Clareen ;
Nevidjon, Brenda ;
Fraser, Debbie ;
Mazanec, Polly .
JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2018, 20 (01) :23-29
[6]   Advance care planning with individuals experiencing homelessness: Literature review and recommendations for public health practice [J].
Hubbell, Sarah A. .
PUBLIC HEALTH NURSING, 2017, 34 (05) :472-478
[7]  
HUD Exchange, 2017, HUD 2017 CONT CAR HO
[8]   Completion of Advance Directives Among Low-Income Older Adults: Does Race/Ethnicity Matter? [J].
Ko, Eunjeong ;
Lee, Jaehoon .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2014, 31 (03) :247-253
[9]  
Leininger M.M., 2006, Culture care diversity and universality: A worldwide nursing theory, P1
[10]   Chronically homeless persons' participation in an advance directive intervention: A cohort study [J].
Leung, Alexander K. ;
Nayyar, Dhruv ;
Sachdeva, Manisha ;
Song, John ;
Hwang, Stephen W. .
PALLIATIVE MEDICINE, 2015, 29 (08) :746-755