Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research

被引：21

作者：

Balogh, Robert ^{[1
]}

Leonard, Helen ^{[2
]}

Bourke, Jenny ^{[2
]}

Brameld, Kate ^{[3
]}

Downs, Jenny ^{[2
]}

Hansen, Michele ^{[2
]}

Glasson, Emma ^{[2
]}

Lin, Elizabeth ^{[4
]}

Lloyd, Meghann ^{[1
]}

Lunsky, Yona ^{[4
]}

O'Donnell, Melissa ^{[2
]}

Shooshtari, Shahin ^{[5
]}

Wong, Kingsley ^{[2
]}

Krahn, Gloria ^{[6
]}

机构：

[1] Ontario Tech Univ, Oshawa, ON, Canada

[2] Univ Western Australia, Telethon Kids Inst, Perth, WA, Australia

[3] Curtin Univ, Perth, WA, Australia

[4] Ctr Addict & Mental Hlth, Toronto, ON, Canada

[5] Univ Manitoba, Winnipeg, MB, Canada

[6] Oregon State Univ, Corvallis, OR 97331 USA

来源：

INTELLECTUAL AND DEVELOPMENTAL DISABILITIES | 2019年 / 57卷 / 05期

关键词：

intellectual and developmental disabilities; data linkage; health surveillance; CARE SENSITIVE CONDITIONS; WESTERN-AUSTRALIA; HEALTH DATA; BIG DATA; ADMINISTRATIVE DATA; CHILD MALTREATMENT; LINKED DATA; POPULATION; PREVALENCE; PEOPLE;

D O I：

10.1352/1934-9556-57.5.439

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Data linkage holds great promise for generating new information about people with intellectual and developmental disabilities (IDD) as a population, yet few centers have developed the infrastructure to utilize this methodology. Two examples, from Canada and Australia, describe their efforts in building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research. The value of data linkage is illustrated through new estimates of prevalence of IDD; health service utilization patterns; associations with sociodemographic characteristics, and with physical and mental health conditions (e.g., chronic diseases, injury, fertility, and depression); and findings on equity in medical treatments. Examples are provided of findings used for governmental policy and program planning.

引用

页码：439 / 462

页数：24

共 118 条

[1] Birth outcomes among US women with intellectual and developmental disabilities [J].