Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health

被引:12
作者
Wong, Alex W. K. [1 ,2 ]
Lau, Stephen C. L. [1 ]
Cella, David [3 ,4 ]
Lai, Jin-Shei [3 ,5 ]
Xie, Guanli [6 ]
Chen, Lidian [6 ]
Chan, Chetwyn C. H. [7 ]
Heinemann, Allen W. [8 ,9 ]
机构
[1] Washington Univ, Sch Med, Program Occupat Therapy, 4444 Forest Pk Ave,Campus Box 8505, St Louis, MO 63108 USA
[2] Washington Univ, Sch Med, Dept Neurol, 4444 Forest Pk Ave,Campus Box 8505, St Louis, MO 63108 USA
[3] Northwestern Univ, Feinberg Sch Med, Dept Med Social Sci, Chicago, IL 60611 USA
[4] Northwestern Univ, Ctr Patient Ctr Outcomes, Feinberg Sch Med, Chicago, IL 60611 USA
[5] Northwestern Univ, Dept Pediat, Feinberg Sch Med, Chicago, IL 60611 USA
[6] Fujian Univ Tradit Chinese Med, Coll Rehabil Med, Fuzhou, Fujian, Peoples R China
[7] Hong Kong Polytech Univ, Dept Rehabil Sci, Hong Kong, Hong Kong, Peoples R China
[8] Northwestern Univ, Feinberg Sch Med, Dept Phys Med & Rehabil, Chicago, IL 60611 USA
[9] Rehabil Inst Chicago, Ctr Rehabil Outcomes Res, Chicago, IL 60611 USA
关键词
Outcomes assessment (Healthcare); ICF; Quality of life; Neurological disorders; Rehabilitation; PATIENT-REPORTED OUTCOMES; ENVIRONMENTAL-FACTORS; ITEM DEVELOPMENT; SYSTEM; STROKE; ICF; VALIDATION; PARTICIPATION; PEOPLE; INJURY;
D O I
10.1007/s11136-017-1590-9
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The quality of life in neurological disorders (Neuro-QoL) is a U.S. National Institutes of Health initiative that produced a set of self-report measures of physical, mental, and social health experienced by adults or children who have a neurological condition or disorder. To describe the content of the Neuro-QoL at the item level using the World Health Organization's international classification of functioning, disability and health (ICF). We assessed the Neuro-QoL for its content coverage of functioning and disability relative to each of the four ICF domains (i.e., body functions, body structures, activities and participation, and environment). We used second-level ICF three-digit codes to classify items into categories within each ICF domain and computed the percentage of categories within each ICF domain that were represented in the Neuro-QoL items. All items of Neuro-QoL could be mapped to the ICF categories at the second-level classification codes. The activities and participation domain and the mental functions category of the body functions domain were the areas most often represented by Neuro-QoL. Neuro-QoL provides limited coverage of the environmental factors and body structure domains. Neuro-QoL measures map well to the ICF. The Neuro-QoL-ICF-mapped items provide a blueprint for users to select appropriate measures in ICF-based measurement applications.
引用
收藏
页码:2435 / 2448
页数:14
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