Too Vulnerable to Involve? Challenges of Engaging Vulnerable Groups in the Co-production of Public Services through Research

被引:35
作者
Amann, Julia [1 ]
Sleigh, Joanna [1 ]
机构
[1] Swiss Fed Inst Technol, Dept Hlth Sci & Technol, Hlth Eth & Policy Lab, Hottingerstr 10, CH-8092 Zurich, Switzerland
关键词
Co-production; vulnerable groups; public services research;
D O I
10.1080/01900692.2021.1912089
中图分类号
C93 [管理学]; D035 [国家行政管理]; D523 [行政管理]; D63 [国家行政管理];
学科分类号
12 ; 1201 ; 1202 ; 120202 ; 1204 ; 120401 ;
摘要
Involving the public in the co-production of research to inform public service delivery can help to ensure the appropriateness of services. However, vulnerable groups are often systematically excluded from these activities. To raise awareness and stimulate discussion, this review 1) describes how vulnerable groups are currently involved in the co-production of research aimed at improving public services; (2) consolidates the challenges researchers encountered in these instances; and (3) produces an overview of the emergent solutions and recommendations for overcoming these challenges. The authors conclude that critical reflection, mutual learning, and capacity building can promote the involvement of vulnerable groups.
引用
收藏
页码:715 / 727
页数:13
相关论文
共 49 条
[1]   Managing wickedness in the Niger Delta: Can a new approach to multi-stakeholder governance increase voice and sustainability? [J].
Acey, Charisma .
LANDSCAPE AND URBAN PLANNING, 2016, 154 :102-114
[2]   Social Interaction Needs and Entertainment Approaches to Pregnancy Well-Being in mHealth Technology Design for Low-Income Transmigrant Women: Qualitative Codesign Study [J].
AlJaberi, Hana .
JMIR MHEALTH AND UHEALTH, 2018, 6 (04)
[3]   LADDER OF CITIZEN PARTICIPATION [J].
ARNSTEIN, SR .
JOURNAL OF THE AMERICAN INSTITUTE OF PLANNERS, 1969, 35 (04) :216-224
[4]   Learning from collaborative research on sustainably managing fresh water: implications for ethical research-practice engagement [J].
Ayre, Margaret L. ;
Wallis, Philip J. ;
Daniell, Katherine A. .
ECOLOGY AND SOCIETY, 2018, 23 (01)
[5]  
Beal G.M., 1986, Knowledge generation, exchange, and utilization
[6]   'I'm sure we made it a better study ... ': Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study [J].
Beighton, Carole ;
Victor, Christina ;
Carey, Iain M. ;
Hosking, Fay ;
DeWilde, Steve ;
Cook, Derek G. ;
Manners, Paula ;
Harris, Tess .
JOURNAL OF INTELLECTUAL DISABILITIES, 2019, 23 (01) :78-96
[7]   How to engage stakeholders in research: design principles to support improvement [J].
Boaz, Annette ;
Hanney, Stephen ;
Borst, Robert ;
O'Shea, Alison ;
Kok, Maarten .
HEALTH RESEARCH POLICY AND SYSTEMS, 2018, 16
[8]   The concept of ′vulnerability′ in research ethics: an in-depth analysis of policies and guidelines [J].
Bracken-Roche, Dearbhail ;
Bell, Emily ;
Macdonald, Mary Ellen ;
Racine, Eric .
HEALTH RESEARCH POLICY AND SYSTEMS, 2017, 15
[9]  
Braun V., 2006, Qualitative Research in Psychology, V3, P77, DOI [DOI 10.1191/1478088706QP063OA, https://doi.org/10.1191/1478088706qp063oa]
[10]   Evaluating the impact of involving young people in developing children's services in an acute hospital trust [J].
Coad, Jane ;
Flay, Julia ;
Aspinall, Mandy ;
Bilverstone, Ben ;
Coxhead, Elodie ;
Hones, Becky .
JOURNAL OF CLINICAL NURSING, 2008, 17 (23) :3115-3122