Disability "In-Justice": The Benefits and Challenges of "Yarning" With Young People Undergoing Diagnostic Assessment for Fetal Alcohol Spectrum Disorder in a Youth Detention Center

被引:21
作者
Hamilton, Sharynne [1 ]
Reibel, Tracy [1 ]
Maslen, Sarah [3 ]
Watkins, Rochelle [2 ]
Jacinta, Freeman [1 ]
Passmore, Hayley [1 ]
Mutch, Raewyn [1 ]
O'Donnell, Melissa [1 ]
Braithwaite, Valerie [4 ,5 ]
Bower, Carol [1 ]
机构
[1] Telethon Kids Inst, Perth, WA 6872, Australia
[2] Telethon Kids Inst, FASD Res Australia Ctr Res Excellence, Perth, WA, Australia
[3] Univ Canberra, Fac Business Govt & Law, Sociol, Canberra, ACT, Australia
[4] Australian Natl Univ, Coll Asia & Pacific, Psychol Background, Canberra, ACT, Australia
[5] Australian Natl Univ, Coll Asia & Pacific, Regulatory Inst Network RegNet, Canberra, ACT, Australia
基金
英国医学研究理事会; 澳大利亚国家健康与医学研究理事会;
关键词
health; adolescents; youth; young adults; mental health and illness; social services; caregivers; caretaking; disability; children; culture; cultural competence; developmental disability; disabled persons; ethics; moral perspectives; users' experiences; health care; prisons; prisoners; qualitative Yarning; Australia; Western Australia; HEALTH RESEARCH; CHILDREN; OFFENDERS; MODEL; LIFE; DRAW;
D O I
10.1177/1049732319882910
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Undertaking research with young people presents an array of methodological challenges. We report the findings from a qualitative study that took place alongside a fetal alcohol spectrum disorder (FASD) prevalence study among detainees in Australia. Of 38 participants, 27 were Aboriginal youth. Interviews were conducted using "social yarning" and "research topic yarning," an Indigenous research method which allows for data collection in an exploratory, culturally safe way. A complex interplay emerged between social yarning and research topic yarning which provided a space to explore responsively with participants their experiences of FASD assessments. Flexibility, including language adaptation and visual descriptions about assessments, was utilized to assist participants recall and retell their experiences. There were, however, challenges in gathering data on the assessment experiences of some participants. We describe how employing a "yarning" method for collecting data could benefit children and young people undergoing neurodevelopmental assessments in the future.
引用
收藏
页码:314 / 327
页数:14
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