Transition to Adulthood for Autistic Adolescents: Topics Discussed by Healthcare Providers With Autistic Patients and Families

被引:4
|
作者
Myers, Rachel K. [1 ,2 ,8 ]
Labows, Christina [1 ]
Yerys, Benjamin E. [3 ,4 ]
McDonald, Catherine C. [1 ,5 ,6 ]
Sartin, Emma B. [1 ]
Mollen, Cynthia J. [2 ,7 ]
Curry, Allison E. [1 ,2 ]
机构
[1] Childrens Hosp Philadelphia, Ctr Injury Res & Prevent, Philadelphia, PA USA
[2] Univ Penn, Perelman Sch Med, Dept Pediat, Div Emergency Med, Philadelphia, PA USA
[3] Childrens Hosp Philadelphia, Ctr Autism Res, Philadelphia, PA USA
[4] Univ Penn, Dept Psychiat, Perelman Sch Med, Philadelphia, PA USA
[5] Univ Penn, Sch Nursing, Dept Family & Community Hlth, Philadelphia, PA USA
[6] Univ Penn, Perelman Sch Med, Dept Pediat, Div Pediat, Philadelphia, PA USA
[7] Childrens Hosp Philadelphia, PolicyLab, Philadelphia, PA USA
[8] Childrens Hosp Philadelphia, Ctr Injury Res & Prevent, 2716 South St,13th Floor, Philadelphia, PA 19146 USA
基金
美国国家卫生研究院;
关键词
Autism spectrum disorder; Transition to adult care; Delivery of healthcare; Adolescent health services; Quality of life; Activities of daily living; YOUNG-ADULTS; YOUTH; PERSPECTIVES; CHILDREN;
D O I
10.1016/j.jadohealth.2021.12.011
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Purpose: We surveyed healthcare providers to determine the extent to which they discuss transition-to-adulthood topics with autistic patients without intellectual disabilities.Methods: Seventy-four healthcare providers in the Philadelphia area reported on the patient age at which they begin transition conversations, topics covered, and provider comfort. We calculated the proportion of providers who endorsed each transition topic, overall and by clinical setting.Results: Providers initiated transition-related conversations at a median age of 16 years (IQR: 14, 18), with over half reporting they were "somewhat" or "a little" comfortable with discussions. Nearly all providers discussed at least one healthcare, well-being, and mental health topic, while basic need-related discussions were limited.Discussion: Results suggest providers may delay and feel poorly prepared to provide anticipatory guidance to autistic patients for transition to adulthood. Future efforts to enhance the available resources and preparation available to providers are essential to meet autistic patients' needs.(c) 2021 Society for Adolescent Health and Medicine. All rights reserved.
引用
收藏
页码:829 / 832
页数:4
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