Mothers' Perceived Barriers to and Recommendations for Health Care Appointment Keeping for Children Who Have Cerebral Palsy

被引:22
作者
Ballantyne, Marilyn [1 ,5 ]
Liscumb, Laurie [1 ]
Brandon, Erin [2 ,3 ,5 ]
Jaffar, Anice [4 ]
Macdonald, Andrea [4 ]
Beaune, Laura [1 ]
机构
[1] Holland Bloorview Kids Rehabil Hosp, 150 Kilgour Rd, Toronto, ON M4G 1R8, Canada
[2] Holland Bloorview Kids Rehabil Hosp, Complex Care NP Led Clin, Toronto, ON, Canada
[3] Holland Bloorview Kids Rehabil Hosp, Rett Syndrome Pathway Clin, Toronto, ON, Canada
[4] Holland Bloorview Kids Rehabil Hosp, Ambulatory Care, Toronto, ON, Canada
[5] Univ Toronto, Toronto, ON, Canada
关键词
cerebral palsy; children; disability; health and well-being; health care; access to; lived experience; mothers; mothering; qualitative research; rehabilitation; FAMILY-CENTERED CARE; MISSED APPOINTMENTS; NON-ATTENDANCE; NO-SHOWS; NEEDS; ADOLESCENTS; PEDIATRICS; TELEPHONE; REASONS; PREDICT;
D O I
10.1177/2333393619868979
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Children with cerebral palsy (CP) require ongoing rehabilitation services to address complex health care needs. Attendance at appointments ensures continuity of care and improves health and well-being. The study's aim was to gain insight into mothers' perspectives of the factors associated with nonattendance. A qualitative descriptive design was conducted to identify barriers and recommendations for appointment keeping. Semi-structured interviews were conducted with 15 mothers of children with CP. Data underwent inductive qualitative analysis. Mothers provided rich context regarding barriers confronted for appointment keeping-transportation and travel, competing priorities for the child and family, and health services. Mothers' recommendations for improving the experience of attending appointments included virtual care services, transportation support, multimethod scheduling and appointment reminders, extended service hours, and increased awareness among staff of family barriers to attendance. The results inform services/policy strategies to facilitate appointment keeping, thereby promoting access to ongoing rehabilitation services for children with CP.
引用
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页数:13
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