International pediatric thrombosis network to advance pediatric thrombosis research: Communication from the ISTH SSC subcommittee on pediatric and neonatal thrombosis and hemostasis

被引：26

作者：

van Ommen, C. Heleen ^{[1
]}

Albisetti, Manuela ^{[2
]}

Bhatt, Mohir ^{[3
]}

Bonduel, Marianne ^{[4
]}

Branchford, Brian ^{[5
]}

Chalmers, Elizabeth ^{[6
]}

Chan, Anthony ^{[7
]}

Goldenberg, Neil A. ^{[8
,9
,10
,11
]}

Holzhauer, Susanne ^{[12
]}

Monagle, Paul ^{[13
,14
]}

Nowak-Goettl, Ulrike ^{[15
,16
]}

Revel-Vilk, Shoshana ^{[17
]}

Sciuccatie, Gabriela ^{[18
]}

Sirachainan, Nongnuch ^{[19
]}

Male, Christoph ^{[20
]}

机构：

[1] Erasmus MC, Sophia Childrens Hosp, Dept Pediat Hematol Oncol, Wytemaweg 80, NL-3015 CN Rotterdam, Netherlands

[2] Univ Childrens Hosp, Div Hematol, Zurich, Switzerland

[3] McMaster Univ, Dept Pediat, Hamilton, ON, Canada

[4] Hosp Pediat Prof Dr Juan P Garrahan, Serv Hematol & Oncol, Buenos Aires, DF, Argentina

[5] Univ Colorado, Dept Pediat, Anschutz Med Campus, Denver, CO 80202 USA

[6] Royal Hosp Children, Dept Hematol, Glasgow, Lanark, Scotland

[7] McMaster Univ, Dept Pediat, Hamilton, ON, Canada

[8] Johns Hopkins Univ, Sch Med, Dept Pediat, Div Hematol, Baltimore, MD 21205 USA

[9] Johns Hopkins Univ, Sch Med, Dept Med, Div Hematol, Baltimore, MD 21205 USA

[10] Johns Hopkins All Childrens Hosp, Thrombosis & Stroke Programs, St Petersburg, FL USA

[11] Johns Hopkins All Childrens Inst Clin & Translat, St Petersburg, FL USA

[12] Charite, Dept Pediat Hematol Oncol, Berlin, Germany

[13] Univ Melbourne, Murdoch Childrens Res Inst, Hematol Res Grp, Dept Pediat, Melbourne, Vic, Australia

[14] Royal Childrens Hosp, Dept Clin Hematol, Melbourne, Vic, Australia

[15] Dept Pediat Hematol Oncol, Munster, Germany

[16] Univ Munster, Univ Hosp Kiel Lubeck, Inst Clin Chem, Kiel, Germany

[17] Hebrew Univ Jerusalem, Shaare Zedek Med Ctr, Pediat Hematol Oncol Unit, Jerusalem, Israel

[18] Hosp Pediat Prof Dr Juan P Garrahan, Serv Hematol & Oncol, Buenos Aires, DF, Argentina

[19] Mahidol Univ, Ramathibodi Hosp, Fac Med, Dept Pediat, Bangkok, Thailand

[20] Med Univ Vienna, Dept Pediat, Vienna, Austria

来源：

JOURNAL OF THROMBOSIS AND HAEMOSTASIS | 2021年 / 19卷 / 04期

关键词：

network; observational; pediatric; registry; thromboembolism;

D O I：

10.1111/jth.15260

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Pediatric thromboembolism is a rare and heterogenous disease. As a result, there is a paucity of knowledge with regard to natural history, management, and outcomes of most types of pediatric venous and arterial thromboembolism. International research collaboration is needed to fill these knowledge gaps. Not only randomized controlled trials, but also representative observational studies are required to answer all research questions. Therefore, the ISTH SSC Subcommittee on Pediatric and Neonatal Thrombosis and Hemostasis initiated the International Pediatric Thrombosis Network (IPTN). The aims of the IPTN include (1) development of the Throm-PED registry to facilitate international prospective observational studies, and (2) establishment of a network of pediatric thrombosis centers experienced in effectively conducting clinical trials and observational studies. The IPTN needs dedicated clinicians all over the world and several funding sources to obtain high-quality research data to reach its ultimate goal of improving care in children with thrombosis. The aim of this communication is to call for active participation in the IPTN to all physicians taking care of children with thrombosis worldwide.

引用

页码：1123 / 1129

页数：7

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