Inflammatory Bowel Disease Competence Network

被引:2
作者
Schreiber, Stefan [1 ]
Hartmann, Heinz [2 ]
Kruis, Wolfgang [2 ]
Kucharzik, Torsten [2 ]
Mudter, Jonas [2 ]
Siegmund, Britta [2 ]
Stallmach, Andreas [2 ]
Witte, Christine [2 ]
Fitzke, Klaus [2 ]
Bokemeyer, Bernd [3 ]
机构
[1] Univ Kiel, Univ Klinikum Schleswig Holstein, Innere Med Klin, Campus Kiel,Schittenhelmstr 12, D-24105 Kiel, Germany
[2] Kompetenznetz Darmerkrankungen, Kiel, Germany
[3] Gastroenterolog Gemeinschaftspraxis Minden, Minden, Germany
关键词
Competence Network Inflammatory Bowel Disease; Inflammatory bowel disease; Crohn's disease; Ulcerative colitis; Microscopic colitis; ULCERATIVE-COLITIS; MAINTENANCE THERAPY; CERTOLIZUMAB PEGOL;
D O I
10.1007/s00103-016-2317-8
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The Inflammatory Bowel Disease Competence Network is a network of more than 500 physicians and scientists from university clinics, hospitals and gastroenterology practices. The focus extends from the two major forms of inflammatory bowel diseases, Crohn's disease and ulcerative colitis, into other chronic inflammatory conditions affecting the intestine, including coeliac disease and microscopic colitis. The network translates basic science discoveries (in particular in the molecular epidemiology research) into innovative diagnostics and therapy. Through its strong networking structures it supports a continuous process to improve quality and standardisation in patient care that is implemented in close interaction with European networks addressing this disease group. Optimisation of patient care based on scientifically proven evidence is a main focus of the network. Therefore, it supports and coordinates translational research and infrastructure projects that investigate aetiology, improvement of diagnostic methods, and development of new or improved use of established therapies. Members participate in various training projects, thus ensuring the rapid transfer of research results into clinical practice. The competence network cooperates with the main patient organisations to engage patients in all levels of activities. The network and the patient organisations have interest in promoting public awareness about the disease entities, because their importance and burden is underestimated in non-specialised medical fields and among the general public.
引用
收藏
页码:465 / 474
页数:10
相关论文
共 15 条
  • [1] Bokemeyer B, 2015, J CROHNS COLITIS, V9, pS359
  • [2] Bokemeyer B, 2014, UNITED EUROPEAN G S1, V2, pA220
  • [3] Adherence to the H1N1 vaccination recommendation in patients with Crohn's disease or ulcerative colitis
    Bokemeyer, Bernd
    Stallmach, Andreas
    Schmidt, Carsten
    Teich, Niels
    Klugmann, Tobias
    Vieth, Michael
    Baumgart, Daniel C.
    Sturm, Andreas
    Felten, Gisela
    Hueppe, Dietrich
    Emmrich, Joerg
    Boecker, Ulrich
    Maaser, Christian
    Baestlein, Elke Christiane
    Ehehalt, Robert
    Krummenerl, Thomas
    Bachmann, Oliver
    Kruis, Wolfgang
    Mross, Michael
    Herrlinger, Klaus
    Helwig, Ulf
    Buening, Juergen
    Aschenbeck, Jens
    Siegmund, Britta
    Preiss, Jan
    Maul, Jochen
    Drossel, Rolf
    Schiefke, Ingolf
    Reinshagen, Max
    Heidemann, Jan
    Luegering, Andreas
    Rehbehn, Kai Uwe
    Pfeiffer, Albrecht
    Jessen, Petra
    Schreiber, Stefan
    Rosezin, Barbara
    Dignass, Axel
    Boehm, Stephan
    [J]. DEUTSCHE MEDIZINISCHE WOCHENSCHRIFT, 2011, 136 (18) : 939 - 943
  • [4] Genome-wide association study for ulcerative colitis identifies risk loci at 7q22 and 22q13 (IL17REL)
    Franke, Andre
    Balschun, Tobias
    Sina, Christian
    Ellinghaus, David
    Haesler, Robert
    Mayr, Gabriele
    Albrecht, Mario
    Wittig, Michael
    Buchert, Eva
    Nikolaus, Susanna
    Gieger, Christian
    Wichmann, H. Erich
    Sventoraityte, Jurgita
    Kupcinskas, Limas
    Onnie, Clive M.
    Gazouli, Maria
    Anagnou, Nicholas P.
    Strachan, David
    McArdle, Wendy L.
    Mathew, Christopher G.
    Rutgeerts, Paul
    Vermeire, Severine
    Vatn, Morten H.
    Krawczak, Michael
    Rosenstiel, Philip
    Karlsen, Tom H.
    Schreiber, Stefan
    [J]. NATURE GENETICS, 2010, 42 (04) : 292 - 294
  • [5] New tools and approaches for improved management of inflammatory bowel diseases
    Ghosh, Subrata
    Pariente, Benjamin
    Mould, Diane R.
    Schreiber, Stefan
    Petersson, Joel
    Hommes, Daniel
    [J]. JOURNAL OF CROHNS & COLITIS, 2014, 8 (10) : 1246 - 1253
  • [6] ACE2 links amino acid malnutrition to microbial ecology and intestinal inflammation
    Hashimoto, Tatsuo
    Perlot, Thomas
    Rehman, Ateequr
    Trichereau, Jean
    Ishiguro, Hiroaki
    Paolino, Magdalena
    Sigl, Verena
    Hanada, Toshikatsu
    Hanada, Reiko
    Lipinski, Simone
    Wild, Birgit
    Camargo, Simone M. R.
    Singer, Dustin
    Richter, Andreas
    Kuba, Keiji
    Fukamizu, Akiyoshi
    Schreiber, Stefan
    Clevers, Hans
    Verrey, Francois
    Rosenstiel, Philip
    Penninger, Josef M.
    [J]. NATURE, 2012, 487 (7408) : 477 - U89
  • [7] First Multicenter Study of Modified Release Phosphatidylcholine "LT-02" in Ulcerative Colitis: A Randomized, Placebo-Controlled Trial in Mesalazine-Refractory Courses
    Karner, Max
    Kocjan, Andreas
    Stein, Juergen
    Schreiber, Stefan
    von Boyen, Georg
    Uebel, Peter
    Schmidt, Carsten
    Kupcinskas, Limas
    Dina, Ion
    Zuelch, Frank
    Keilhauer, Gerhard
    Stremmel, Wolfgang
    [J]. AMERICAN JOURNAL OF GASTROENTEROLOGY, 2014, 109 (07) : 1041 - 1051
  • [8] Evidence-Based and Consented Pathways for Patients with Inflammatory Bowel Diseases (IBD)
    Raspe, H.
    Conrad, S.
    Muche-Borowski, C.
    [J]. ZEITSCHRIFT FUR GASTROENTEROLOGIE, 2009, 47 (06): : 541 - 562
  • [9] Long-term safety and efficacy of certolizumab pegol in the treatment of Crohn's disease: 7-year results from the PRECiSE 3 study
    Sandborn, W. J.
    Lee, S. D.
    Randall, C.
    Gutierrez, A.
    Schwartz, D. A.
    Ambarkhane, S.
    Kayhan, C.
    Pierre-Louis, B.
    Schreiber, S.
    Lichtenstein, G. R.
    [J]. ALIMENTARY PHARMACOLOGY & THERAPEUTICS, 2014, 40 (08) : 903 - 916
  • [10] Certolizumab pegol for the treatment of Crohn's disease
    Sandborn, William J.
    Feagan, Brian G.
    Stoinov, Simeon
    Honiball, Pieter J.
    Rutgeerts, Paul
    Mason, David
    Bloomfield, Ralph
    Schreiber, Stefan
    [J]. NEW ENGLAND JOURNAL OF MEDICINE, 2007, 357 (03) : 228 - 238