Location of end-of-life care of children with cancer: A systematic review of parent experiences

被引：17

作者：

Noyes, Michelle ^{[1
,2
]}

Herbert, Anthony ^{[2
,3
,4
]}

Moloney, Susan ^{[1
]}

Irving, Helen ^{[4
]}

Bradford, Natalie ^{[2
,3
,4
,5
]}

机构：

[1] Gold Coast Univ Hosp, Oncol Serv, Gold Coast, Qld, Australia

[2] Queensland Univ Technol, Sch Nursing, Fac Hlth, Brisbane, Qld, Australia

[3] Childrens Hlth Queensland Hosp & Hlth Serv, Oncol Serv Grp, Queensland Paediat Palliat Care Haematol & Onco, Brisbane, Qld, Australia

[4] Queensland Univ Technol, Canc & Palliat CareOutcome Ctr, Brisbane, Qld, Australia

[5] Childrens Hlth Queensland Hosp & Hlth Serv, Ctr Childrens Hlth Res, Brisbane, Qld, Australia

来源：

PEDIATRIC BLOOD & CANCER | 2022年 / 69卷 / 06期

关键词：

adolescent; child; decision making; neoplasms; parents; place of death; qualitative research; terminal care; PALLIATIVE CARE; BEREAVED PARENTS; DEATH; PERCEPTIONS; PLACE; HOME; DIE;

D O I：

10.1002/pbc.29621

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Objective To synthesize existing qualitative research exploring the experiences of parents caring for children with cancer during the end-of-life phase, and the factors that influence parental decision-making when choosing the location of end-of-life care and death for their child. Results This review included 15 studies of 460 parents of 333 children and adolescents who died from progressive cancer. Where reported, the majority (58%) of children died at home or in a hospital (39%), with only a small fraction dying in a hospice. Factors impacting decision-making for the location of care included the quality of communication and the quality of care available. Themes related to choosing home for end-of-life care and death included honoring the child's wishes, the familiarity of home, and parents' desire to be their child's primary carer. Preference for the location of death in the hospital included trust in hospital staff, practical logistics, and the safety of the hospital environment.

引用

页数：12

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