Perceived barriers to self-management for people with dementia in the early stages

被引:40
作者
Martin, Faith [1 ]
Turner, Andrew [1 ]
Wallace, Louise M. [1 ]
Choudhry, Kubra [1 ]
Bradbury, Nicola [2 ]
机构
[1] Coventry Univ, Appl Res Ctr Hlth & Lifestyle Intervent, Coventry CV1 5FB, W Midlands, England
[2] Birmingham & Solihull Mental Hlth NHS Fdn Trust, Birmingham, W Midlands, England
来源
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE | 2013年 / 12卷 / 04期
关键词
dementia; self-management; needs assessment; qualitative; HEALTH-PROMOTION; CARE; INTERVENTION; DISEASE; FRAMEWORK; EDUCATION; IDENTITY; EPILEPSY; STIGMA; MODEL;
D O I
10.1177/1471301211434677
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
People with dementia in the early stages currently experience a care gap, which self-management may address. We explore perceived barriers to self-management. Using a systematic approach (logic mapping), 19 participants (people with dementia, carers, health care professionals and charity representatives) described self-management barriers facing people living with dementia. Thematic content analysis revealed six main themes: the lived experience of dementia, diagnosis, role of carer/family, impact of health care professionals, organisation of health services and societal views. People with dementia were seen as passive recipients of care, unable to self-manage owing to the impact of dementia on cognitive abilities. The need for interventions that are largely emotion focused, encourage activity maintenance and improve quality of life are described. Barriers to self-management exist at multiple levels, suggesting a whole-systems approach is required.
引用
收藏
页码:481 / 493
页数:13
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