Measuring outcomes in randomized prospective trials in palliative care

被引：35

作者：

Mularski, Richard A.

Rosenfeld, Kenneth

Coons, Stephen Joel

Dueck, Amylou

Cella, David

Feuer, David J.

Lipscomb, Joseph

Karpeh, Martin S., Jr.

Mosich, Tom

Sloan, Jeff A.

Krouse, Robert S.

机构：

[1] Oregon Hlth & Sci Univ, Ctr Hlth Res, Kaiser Permanent NW, Portland, OR 97227 USA

[2] NW Permanente PC Kaiser Sunnsyde Med Ctr, Portland, OR USA

[3] Vet Adm Greater Los Angeles Healthcare Syst, Vet Integrated Palliat Program, Los Angeles, CA USA

[4] Univ Calif Los Angeles, David Geffen Sch Med, Los Angeles, CA 90024 USA

[5] Univ Arizona, Coll Pharm, Behav Measurement Shared Serv, Tucson, AZ 85721 USA

[6] Univ Arizona, Coll Publ Hlth, Behav Measurement Shared Serv, Tucson, AZ 85721 USA

[7] Arizona Canc Ctr, Tucson, AZ 85721 USA

[8] Mayo Clin, Rochester, MN USA

[9] Evanston NW Healthcare, Ctr Outcomes Res & Educ, Evanston, IL USA

[10] Northwestern Univ, Feinberg Sch Med, Evanston, IL 60208 USA

[11] Barts & London Natl Hlth Serv Trust, St Bartholomews Hosp, Barts & London Palliat Care Team, London, England

[12] Emory Univ, Rollins Sch Publ Hlth, Atlanta, GA 30322 USA

[13] SUNY Stony Brook, Univ Hosp, Div Surg Oncol, Stony Brook, NY 11794 USA

[14] So Arizona Vet Affairs Hlth Care Syst, Amer Canc Soc, Tucson, AZ USA

[15] Univ Arizona, Coll Med, Tucson, AZ 85721 USA

来源：

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | 2007年 / 34卷 / 01期

关键词：

death; quality of dying; outcome assessment; quality of health care; quality indicators; health care; end-of-life care; family; proxy; terminal care; attitude to death;

D O I：

10.1016/j.jpainsymman.2007.04.004

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Palliative care aims to improve the quality of life of patients and their families and reduce suffering from life-threatening illness. In assessing palliative care efficacy, researchers must consider a broad range of potential outcomes, including those experienced by the patient's family/caregivers, clinicians, and the health care system. The purpose of this article is to summarize the discussions and recommendations of an Outcomes Working Group convened to advance the palliative care research agenda, particularly in the context of randomized controlled trials. These recommendations address the conceptualization of palliative care outcomes, sources of outcomes data, application of outcome measures in clinical trials, and the methodological challenges to outcome measurement in palliative care populations. As other fields have developed and refined methodological approaches that address their particular research needs, palliative care researchers must do the same to answer important clinical questions in rigorous and credible ways.

引用

页码：S7 / S19

页数：13

共 72 条

[71] COMPARISON OF METHODS FOR THE SCORING AND STATISTICAL-ANALYSIS OF SF-36 HEALTH PROFILE AND SUMMARY MEASURES - SUMMARY OF RESULTS FROM THE MEDICAL OUTCOMES STUDY [J].