Parents' experiences of having a child undergoing congenital heart surgery: An emotional rollercoaster from shocking to blessing

被引：58

作者：

Wei, Holly ^{[1
]}

Roscigno, Cecelia I. ^{[2
]}

Swanson, Kristen M. ^{[3
]}

Black, Beth P. ^{[4
]}

Hudson-Barr, Diane ^{[5
]}

Hanson, Cherissa C. ^{[6
]}

机构：

[1] Univ N Carolina, Sch Nursing, Carrington Hall,CB 7460, Chapel Hill, NC 27599 USA

[2] Univ N Carolina, Sch Nursing, Family Hlth Div, Carrington Hall,CB 7460, Chapel Hill, NC 27599 USA

[3] Seattle Univ, Coll Nursing, 901 12th Ave, Seattle, WA 98122 USA

[4] Univ N Carolina, Sch Nursing, Adult & Geriatr Hlth Div, Carrington Hall,CB 7460, Chapel Hill, NC 27599 USA

[5] Univ N Carolina, Childrens Hosp, Newborn Crit Care Ctr, 101 Manning Dr, Chapel Hill, NC 27514 USA

[6] WakeMed Phys Practices Pediat, 3024 New Bern Ave, Raleigh, NC 27610 USA

来源：

HEART & LUNG | 2016年 / 45卷 / 02期

关键词：

Parents; Children; Congenital heart disease; Experiences; Phenomenology; ELECTIVE CARDIAC-SURGERY; EMPIRICALLY BASED TOOL; PSYCHOLOGICAL DISTRESS; POSTTRAUMATIC GROWTH; QUALITATIVE RESEARCH; DISEASE; STYLES; OPERATIONS; MORBIDITY; INFANTS;

D O I：

10.1016/j.hrtlng.2015.12.007

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Objectives: To describe parents' experiences when their child with congenital heart disease (CHD) underwent heart surgery. Background: About 40,000 children are born with CHD in the United States each year. Very few studies have explored parents' experiences when their child was diagnosed with CHD and underwent heart surgery. Methods: Descriptive phenomenology informed this study that consisted of two interviews with 13 parents. Results: Parents experienced a "rollercoaster" of emotions. Critical times were when parents received their child's diagnosis, handed their child over to the surgical team, and visited their child in the pediatric intensive care unit after surgery. Related stressors were the uncertainty of outcomes after surgery, the loss of parental control, the physical appearance of their child, and the fear of the technological atmosphere in the intensive care unit. Conclusions: The ups and downs of parents' emotions reflected their child's changing condition and parents' adjustment to the condition. (C) 2016 Elsevier Inc. All rights reserved.

引用

页码：154 / 160

页数：7

共 24 条

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