Epidermolysis Bullosa Care in Mexico

被引:1
作者
Liy-Wong, Carmen [2 ]
Cepeda-Valdes, Rodrigo [1 ]
Cesar Salas-Alanis, Julio [1 ]
机构
[1] DebRA MEXICO AC, Colonia Azteca Guadalupe 67150, Nuevo Leon, Mexico
[2] Hosp Univ Dr Jose E Gonzalez UANL, Dept Dermatol, Monterrey, Nuevo Leon, Mexico
关键词
EB; Epidermolysis; Bullosa; Mexico; COLLAGEN GENE COL7A1; MUTATION; G2043R;
D O I
10.1016/j.det.2010.02.014
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Epidermolysis bullosa (EB) in Mexico continues to be a rare genodermatosis that is still unknown for most of the health care professionals in the country. The spirit of DebRA MEXICO was born in 1994 when the Mexican health care team started to see patients with the main purpose to provide medical care, genetic counseling, and advice to patients with EB and their families; to promote collaboration and exchange information among people with EB; to research and find new therapeutic approaches; and finally, to diffuse knowledge and raise awareness of the issues of EB in general public and health care professionals.
引用
收藏
页码:393 / +
页数:3
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