Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: "Cascade"

被引:54
作者
Wakefield, Claire E. [1 ,2 ]
Sansom-Daly, Ursula M. [1 ,2 ,3 ]
McGill, Brittany C. [1 ,2 ]
Ellis, Sarah J. [1 ,2 ]
Doolan, Emma L. [1 ,2 ]
Robertson, Eden G. [1 ,2 ]
Mathur, Sanaa [1 ,2 ]
Cohn, Richard J. [1 ,2 ]
机构
[1] Sydney Childrens Hosp, KCC, Level 1,High St, Randwick, NSW 2031, Australia
[2] Univ New S Wales, UNSW Med, Sch Womens & Childrens Hlth, Discipline Paediat, Sydney, NSW 2052, Australia
[3] Prince Wales Sydney Childrens Hosp, Sydney Youth Canc Serv, Randwick, NSW, Australia
基金
英国医学研究理事会;
关键词
Cancer and oncology; Coping skills and adjustment; Parents; Computer applications/eHealth; QUALITY-OF-LIFE; POSTTRAUMATIC-STRESS; PEDIATRIC CANCER; YOUNG-ADULTS; FAMILY; DEPRESSION; IMPACT; SATISFACTION; ADOLESCENTS; RESILIENCE;
D O I
10.1007/s00520-016-3077-6
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose The aim of this study was to evaluate the feasibility and acceptability of "Cascade": an online, group-based, cognitive behavioral therapy intervention, delivered "live" by a psychologist, to assist parents of children who have completed cancer treatment. Methods Forty-seven parents were randomized to Cascade (n = 25) or a 6-month waitlist (n = 22). Parents completed questionnaires at baseline, 1-2 weeks and 6 months post-intervention. Thirty parents completed full evaluations of the Cascade program (n = 21 randomized to Cascade, n = 9 completed Cascade post-waitlist). Results Ninety-six percent of Cascade participants completed the intervention (n = 24/25). Eighty percent of parents completed every questionnaire (mean completion time 25 min (SD = 12)). Cascade was described as at least "somewhat" helpful by all parents. None rated Cascade as "very/quite" burdensome. Parents reported that the "online format was easy to use" (n = 28, 93.3 %), "I learnt new skills" (n = 28, 93.3 %), and "I enjoyed talking to others" (n = 29, 96.7 %). Peer-to-peer benefits were highlighted by good group cohesion scores. Conclusions Cascade is highly acceptable and feasible. Its online delivery mechanism may address inequities in post-treatment support for parents, a particularly acute concern for rural/remote families. Future research needs to establish the efficacy of the intervention.
引用
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页码:2685 / 2694
页数:10
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